The Right Eyes

Today, Little Bear has been seen by another psychologist. This came about because the last time we saw an Educational Psychologist, I became very irate and had to resist the strong urge to tell him he didn’t know his arse from his elbow. You may remember this ranty post which tells you all about it: Conversations

Thankfully, the Bear’s school were none too impressed either and volunteered to pay for a private psychologist to ensure a non-biased, useful report. I know that I have moaned at times, about the school, but things have come a long way. I feel a real gratitude towards them that they genuinely care, about Little Bear and us, and that they are willing to be creative and do things differently if that’s what’s required. In these times of dwindling budgets, I’m well aware that many schools wouldn’t have funded such an assessment.

It isn’t just that, but by inviting a knowledgeable stranger into the school, they were laying themselves bare to observation and potential criticism. They took that risk because they want to do the best they can for our son and they are willing to make changes to their practice if advised. There is something about us having these shared vulnerabilities and this shared desire to ensure he reaches his full potential and is as happy as he can be, that makes me a little emotional. I think (I hope) that we have reached that much longed for status of Having A Good Working Relationship. And also Mutual Respect. I hope so, because I do feel like giving them a collective hug.

So, having got the right professional across the threshold, how was it?

Other than the times someone from our post-adoption support service has come into school meetings, this was the first time that somebody with an evident knowledge of trauma and attachment has observed Little Bear and seen what I see. There is a palpable relief in that. It isn’t in my mind; I haven’t concocted his needs; I’m not exaggerating. A knowledgeable stranger has come in and is sitting at the table I have sat at many times before and is observing things and recommending things that I have previously talked about, at that very table. She’s more convincing than me because she’s a psychologist and she certainly couldn’t be accused of being a neurotic mother, but even so, it makes me feel a little vindicated.

It’s refreshing. It’s also reassuring and hopeful. It means that instead of things being okay for Little Bear, maybe there is hope of them being the best they could be. I probably haven’t aimed that high for a while – just hoping we could avoid abject failure. School are willing and keen and they like the Psychologist and she is passionate and full of useful ideas. Surely this is the most hopeful our status has been so far?

I complained in my blog about the incompetent Ed Psych, that I knew more about trauma than he did and I’m sure that’s true. (Incidentally, today’s Psychologist said almost the polar opposite of everything he said. One has to laugh). I’ve written about  Being an Expert Parent and how our children necessitate us being so. I have always been a little reluctant about it though, so when a professional appears who is undoubtedly more knowledgeable than me and more experienced than me and I can learn from them, it’s brilliant. There is a surprising relief in it, that allows me to relax a bit, so I can attend the meeting as a Mum, not some sort of parent/professional hybrid trying to do several things at once. It makes me realise how exhausting navigating such meetings can be and how much of my emotional energy is eaten up week to week, trying to make sure Little Bear has what he needs in every area of his life, unwittingly filling the gaps left by others lacking in knowledge. Perhaps I can relax a little about his education now because between the psychologist and the school, I think they’ve got this.

It also highlights how rarely I’m in a situation with a professional who is knowledgeable enough to give advice about Little Bear’s needs. This shouldn’t be the case – that a professional who is trauma-informed is a rarity. Any professional coming to advise on children with developmental trauma should be suitably trained and aware. It is wrong that we find ourselves in a situation where the only way of getting that expertise is to pay for it, especially as childhood trauma is so prevalent.

Anyhow, with the right eyes on Little Bear, what did we learn?

There are some real positives about how things are currently being done. The Psychologist commented how lovely it was that Little Bear’s teacher and his TA are both willing to be physically affectionate with him and allow him to snuggle close to them. His teacher (a man), calls him ‘mate’ a lot and gives him reassuring pats on the back or arm. In this day and age where figures of authority have to be so careful about touching children, and some establishments have become so wary that they don’t touch children at all instead keeping some kind of unnatural and cold distance, it is heartening that the Bear’s school feel able to react to him naturally and to provide him with the physical comfort/connection he needs.

There are also real positives in terms of a multi-sensory curriculum and learning being fun. Little Bear is largely happy in the classroom and his trusting relationship with both members of staff is evident to a new onlooker. These things are reassuring.

What is more concerning is that Little Bear was not observed to be regulated at any point during the morning-long observation. I’m not surprised though. We achieve periods of regulation at home but that’s because we work really hard at it and we have spent three and half years getting tuned in and figuring out what works. I can see that without a trained eye, it would be difficult to figure out the underlying causes (often linked to Interoception in my opinion). I am still very much trying to untangle Little Bear’s sensory needs and that is with Sensory Integration training under my belt and a lot of time to puzzle. I can fully understand how, without the training or the experience, school would struggle to interpret and manage these aspects of Little Bear’s needs. The good thing is that today’s visit has brought them better understanding and the report will bring many practical suggestions for ‘sensory snacks’ to hopefully improve regulation across the day. I’m excited to read the ideas and maybe steal some for home too.

Little Bear was also observed to be anxious, hyper-vigilant and attachment-seeking in the classroom. Staff were observed to be inconsistent in making Little Bear adhere to the rules and at times punished possible self-regulatory behaviour. The big take home message for school was to ask themselves, ‘what is Little Bear showing us with this behaviour?’ ‘What is he showing us he needs?’ ‘What can we do to make him more comfortable/reduce his anxiety?’ instead of saying, ‘how can we stamp out this unwanted behaviour?’

The take home messages for me were more questions to ask of myself: ‘Are we doing enough to meet Little Bear’s sensory needs?’; ‘Should I get somebody else to assess him in this area?’; ‘Do we make appropriate accommodations for his sensory needs, particularly at mealtimes?’ I do find myself saying “sit down properly” a lot more than I probably should.

We talked a lot about difficulties with executive function and employing strategies to support that, such as visual supports, timers and short sharp bursts of learning, interspersed with sensory snacks. We talked about positive feedback, a proper meet and greet, a better transition for the end of lunchtime and closer supervision if unstructured play is leading to difficulties.

One of the main reasons we initially sought psychological input was due to the upcoming need to re-apply for funding for Little Bear. Today’s Psychologist was strongly of the opinion that Little Bear’s supportive adult should not be removed from him – he needs her support to get going with tasks and frequent check-ins to help him complete them. He cannot learn without adult support currently – an opinion we also hold strongly and one of the key reasons I got so frustrated with the LA Ed Psych who thought we should be working towards independence. The fact that today’s Psychologist independently and without any vested interest, drew this opinion is a great outcome and will hopefully add significant weight to our case for funding. I would love to say I’m not worried about that but I am because there are a few wider things also happening, relating to staffing at school and some problems with our back-up plan, should the funding application be rejected. There is always something to worry about it seems, but, today, I’m going to bed hopeful that now Little Bear has been seen through the right eyes, we might be on the right track to him getting the right support.

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The Right Eyes

Navigating Adoption Support Conference

Last Thursday, The Centre for Adoption Support ran their first conference, all about post-adoption support, which I was excited to attend for both professional development and in my parenting role. I thought I’d tell you a bit about what happened there, the key messages that were shared and why it was an important event.

The day began with a keynote speech from Sir John Timpson, of Timpson’s shoe repairs fame. I knew a little about him in advance – that he was a keen supporter of helping to rehabilitate prisoners by offering them employment opportunities (they make up 10% of his workforce) and that he did other altruistic things such as offering free dry-cleaning of suits to the unemployed. I also knew he and his wife had fostered many children. I was looking forward to hearing him speak but hadn’t anticipated he’d be quite so inspirational and amusing to listen to. Without meaning to sound disrespectful, what I think Sir Timpson is particularly adept at is cutting the crap. He isn’t concerned with policy and red-tape and oh that couldn’t possibly be done attitudes. He is concerned with people and creating environments which allow people to thrive. By his own admission, he doesn’t bother with psychometric testing or CVs or previous experience – if somebody is smart, keen and willing to work, they can have a job. His attitude is that a boss’ roll is ‘to help people do the best they can’ and he does that by taking away wider life stresses such as debt (he has a hardship fund for such occasions), by incentivising people to work hard (with free holiday cottages to use, birthdays off and a Dream Come True scheme where one employee per month gets to choose a life-changing event such as a holiday) and by crediting employees with common sense (they can give sums of compensation to customers without manager approval, be flexible with the pricing structure if there’s a sound reason and are not given lessons in customer service, being encouraged to simply treat people as they’d hope to be treated).

This combination of cutting to the chase and being highly proactive has evidently served Sir Timpson well at home too. With his wife, they have fostered 90 children and adopted at least one and it was clear from the anecdotes he shared that as a family they have been around the block. He seemed refreshingly un-shockable. When he has seen opportunities to make things better for fostered or adopted children and for their parents, he has: creating guides to attachment which are available for free in all his stores, offering free holidays for foster carers and getting involved with his children’s school when it was threatened with closure. He stepped in with both financial help and by applying his bottom-up, cut the crap management style to the school. The school was soon full and rated Outstanding by Ofsted.

Sir Timpson continues to be involved with education and trying to make schools attachment and trauma friendly. He believes schools need to be maverick – to be willing to break out from the rules and regulations and limitations imposed on them by LA’s and other bodies – and to give teachers freedom to do what is best for individual children. He believes in inspirational head teachers, whole school approaches and safe spaces. He believes in children with developmental trauma having a consistent mentor within school – crucially he advocates that person being chosen by the child (not inflicted on them) and them being any member of staff, be that a dinner lady or caretaker if the child so chooses. I can’t help feeling that Sir Timpson would be an asset to any organisation, such is his clarity of thought and determination to do what is right, despite any barriers placed in his way. I came away certain in the knowledge that he’s my new favourite maverick and there is hope for our children’s education yet.

The second speaker was Sir Mark Headley, a retired High Court Judge. Having been a judge in the child and family division, a foster carer and adopter, he too had much to contribute. His talk was mainly about the current legal context of adoption, both in the UK and globally. It was fascinating to hear that adoption has only existed within the law since 1926 in this country, and in the four adoption acts passed since then, its purpose has changed from being about ‘the homeless child for the childless home’ to having a welfare role. Apparently our adoption laws are considered ‘draconian’ and ‘excessively hard line’ by other countries and Australian judges consider our system ‘barbaric’. This is because our laws differ in two main ways. Firstly, in the UK, when a child is adopted, the law treats that child as ‘having been born to the adopters in all respects’, in essence extinguishing any link to their birth family (in the eyes of the law) and stripping birth parents of any right to their child. I didn’t get to ask how things are done differently abroad but I’m assuming there is more contact allowed or some ongoing sharing of parental responsibility.

Secondly, in the UK, it is within the law to ‘impose adoption on unwilling parents if the welfare of the child requires it’ but other countries consider this improper or even immoral.

I haven’t ever stopped to think too much about the legalities of adoption but it was certainly enlightening to realise our laws are viewed this way.

Sir Headley went on to talk about the Judge Munby rulings which he feels have been misinterpreted by many as suggesting there should be fewer adoptions. He clarified that Judge Munby’s point was not to reduce adoptions necessarily, but to be clearer about justifying decisions to make placement orders. He talked about it being imperative to consider whether adoption is the best solution for a child and the only solution for them. If the answer to both questions is yes, he believes our laws are justified. If the answer is no, every other possible solution should be considered and ruled in or out first. He advocates ‘not having inflexible mind-sets’ and ‘keeping the welfare of the child central.’ And when he puts it like that, I can’t help thinking he’s right.

After the first two speakers, we all filtered off into parallel workshops that we’d picked in advance. The first one I attended was entitled, ‘Adoption Support: Problems, RAAs and implications for the 3rd Sector.’ I have to admit that all the talk of policy and neoliberalism tied my brain in a few knots. Like Sir Timpson, I am not a fan of policy and policy changes and have already had my fill of it in the NHS so it was tricky to get my brain in gear. The basic point that I gleaned was that the whole shift to Regional Adoption Agencies (RAA’s) isn’t working very well. It seems there is a lot of trying to stick square pegs in round holes going on and the needs of children and families have got a little lost. This is just my interpretation of what I heard – maybe don’t quote me on it.

One major problem for Voluntary Adoption Agencies, such as ours, is that, as I understand it, any assessment of need to inform an application to the Adoption Support Fund (ASF) has to be carried out by an RAA. This means VAA’s hands are a little tied and they need to wait for RAA’s to do the assessing bit. It also seems that instead of parents approaching a post adoption support service (PAS) for help and the PAS assessing and deciding what therapy a young person needs, the assessing teams aren’t knowledgeable enough about the range of therapies available, how they should be applied or how proven/unproven their efficacy is. So, the reality is that parents ask for help and the RAA say, ‘what help do you want?’ and the parent doesn’t know what choices there are and neither do the RAA. It means that applications for funding are not well informed and may not be in the best interests of children. I am speaking in blanket terms but I’m sure some RAA’s are much more informed than others.

I find it difficult knowing some people’s experience of PAS is so horrendous when we are extremely lucky to have the services of The Centre for Adoption Support (CfAS) available to us, where all the members of staff are knowledgeable, highly trained and specialise in PAS. I can’t help feeling that all this tendering and competition in the market is a huge mistake and causes more problems than it solves, as I believe it has in the NHS.

Anyhow, I didn’t like to dwell on such issues and went for some lunch where I had a very interesting conversation about high schools, high-fiving (not a friendly thing but clapping someone on the back hard enough to leave a print – apparently it’s a thing) and Hate Books (also a thing where kids write all the things they hate about each other to bully people with. It sounds lovely) and concluded I’d prefer for my children to just skip high school.

My next mini-lecture was ‘Navigating a Child’s Journey in School’. This was really enlightening for teachers or other professionals and essential listening. For me, I have spent many an hour plumbing the depths of the topic for Little Bear and though I agreed wholeheartedly with the content, there wasn’t anything novel in terms of Being an Expert Parent. However, I suspect the people I had been discussing internal exclusions with would have gone away with significant food for thought.

The talk did introduce me to the term ‘emotional differentiation’ which sums up well what we really want teachers to do for our children. I have never thought about it in those terms yet we talk about ‘educational differentiation’ or ‘differentiation of the curriculum’ but what many of our children need is emotional differentiation. This is also a good rebuttal for the times when someone inevitably argues that you can’t have one rule for one child and another for the rest of your class. You can and this is why.

The final workshop I attended was, ‘Good Practice in Working with Families Affected by Violence and Aggression’ and I have to admit that by the end I was like a woodland creature blinded by headlights – wide eyed and frozen to my chair. I am totally down with the need to be open about Childhood Challenging, Violent & Aggressive Behaviour (CCVAB) , to reduce shame and bring it out from behind closed doors. I just think it is a bit scary to be living with a child who is unpredictable and at times, does tend towards the aggressive. I find that I start workshops like this feeling keen and interested and leave them a bit freaked out for our future. That wasn’t anyone’s intention and the content of the workshop wasn’t designed to shock in any way. I was aware even as I was sat there, that I was bringing my own fears to the table and that was colouring what I was hearing. I think talk of calling the Police and having a Family Safety Plan, avoiding victim-blaming and CPVAA being the main cause of children leaving home prematurely is essential but, simultaneously, I can’t help fearing those things could be in our future and desperately hoping they aren’t. It is certainly different to listen to the facts as a social worker versus as an adopter who can envisage such things in their reality.

I know knowledge is power, but sometimes fear makes you want to bury your head in the sand instead.

The day was finished in record time – I attended the plenary and before I knew it I was wandering back to my car in surprising sunshine. I thought it was a brilliant day. I had found all the lectures engaging and my earlier fears that I might struggle to sit still and concentrate were entirely unfounded. It was great to have social workers, adopters, adoptees, teachers, psychologists and legal representation all under one roof, with one common aim – of making things better for adopted children and adoptive families. The concept of post adoption support is a relatively new one but now there is a recognised need for it, we cannot become complacent. We need to continue to innovate and hone services to make them the best and most responsive they can be. Events like the conference trigger debate which will hopefully disseminate outwards to improve knowledge and set the wheels of change in motion.

This was the first conference run by CfAS but I certainly hope it wasn’t the last.

 

Navigating Adoption Support Conference

Demand Avoidance

I have been pondering this blog for a while and, ironically, avoiding it. There are a few reasons why: it requires research which takes time; I may have had more than my fill, of late, of demand avoidance and I’m not sure how kind it is to myself to spend even more time thinking and writing about it. But hey ho, here I am writing about it because there’s no time like the present and it will, at least, feel current and relevant.

I thought this would end up as a compare and contrast between PDA – Pathological Demand Avoidance – and demand avoidance as part of an attachment profile and potentially some mention of ODD (Oppositional Defiance Disorder), with me arguing that although Little Bear is pretty demand avoidant, I don’t believe he has PDA. However, after reviewing the literature, I feel comfortable to say that PDA and demand avoidance with a trauma history are different conditions and I do think this is acknowledged by some knowledgeable professionals, even if not widely (See this piece of research PDA and differential diagnosis ). I should point out that PDA is not officially recognised as a condition in the DSM or ICD diagnostic manuals but there is a growing belief that it does accurately describe the needs of a specific group of individuals (See PDA Society for more info).

Assuming it does exist, I think what would be really useful would be a Coventry Grid type document (comes up on Google if you are interested)  that drew out the differences between demand avoidance in PDA versus demand avoidance in a trauma background. The difficulty is that this is extremely difficult to draw out. One key factors seem to be the case history – are there trauma/neglect/attachment issues in a child’s background or not? Parents of children who match the diagnosis of PDA are rightly worried about it being branded an attachment disorder because there is a direct insinuation that they have neglected or abused their children. I can see how this could be problematic. However, I do think that where there is identified trauma in a child’s background, such as in Little Bear’s, this should immediately bring into question a diagnosis of PDA. Similarly, I would also say that trauma in a child’s background should bring into question an Autism diagnosis. I’m not saying that an adopted child couldn’t have PDA or Autism: a small percentage could. However, I am saying that where there is trauma in a child’s background, the impact of this should be considered first and foremost.

The second key factor appears to be whether a child who is demand avoidant matches the criteria for Autism. If they do, they are more likely to fit the PDA profile. However, there is also literature out there to contradict this – see Gillberg Research .

I can’t really work out where ODD fits in, because Little Bear appears to fit the profile for that too (ODD is recognised and does have DSM & ICD criteria) but my hunch, again, is that it wouldn’t be right to diagnose him with it.

The group I am interested in are those such as Little Bear, who do not meet the criteria for Autism and do have trauma in their background and are markedly demand avoidant. What is going on with their demand avoidance and how should it best be managed?

A useful place to start seems to be the Extreme Demand Avoidance Questionnaire (EDA-Q) – a questionnaire which has been designed for research purposes and is not diagnostic, but could be useful in picking apart the nature of behaviours we experience. You can find it here: EDA-Q

EDA Questionnaire

I have filled it in for Little Bear. As you can see, he scores 38 points which doesn’t reach the threshold for a PDA diagnosis (the threshold is 50 or over) , though it does say that those scoring lower may still meet the criteria as individuals can be impacted differently. I’m a little unclear as to how this type of decision would be informed. Either way, I don’t think he has PDA, yet he certainly does have a higher than average propensity towards demand avoidance. For context, Big Bear scored 6 on the same questionnaire.

These are the descriptors in which he scored the most highly:

  • Is driven by the need to be in charge
  • If pressurised to do something, s/he may have a ‘meltdown’ (e.g. scream, tantrum, hit or kick).
  • Has difficulty complying with demands unless they are carefully presented.
  • Has bouts of extreme emotional responses to small events (e.g. crying/giggling, becoming furious).

I have previously written about his need for Control which fits in with the first and second point. In reference to the third bullet point, sometimes demands that are made in a reverse psychology kind of way (‘I bet you can’t do x or y’ or ‘I really hope you aren’t going to eat my apple’), or a challenge kind of way (‘I’ll time you to do x’) go better than a straight forward ‘do it, or else’ kind of way. The fact that I have thought of alternative ways to phrase demands suggests this is something we have to do quite often. In reference to the fourth point, at the moment, something as small as asking Little Bear to go to the toilet and then, God forbid, actually wash his hands afterwards, is enough to unleash fury.

It is also interesting which statements he didn’t score on. I am assuming that in order to gain a high enough score to meet diagnostic levels for PDA, a child would generally score highly across all descriptors. Could it be the areas where children without PDA don’t score that are important diagnostic indicators for differential diagnosis?

Little Bear didn’t score on the following:

  • Finds everyday pressures (e.g. having to go on a school trip/ visit dentist) intolerably stressful.
  • Takes on roles or characters (from TV/real life) and ‘acts them out’.
  • Makes an effort to maintain his/her reputation with peers.
  • Prefers to interact with others in an adopted role, or communicate through props/toys.
  • S/he was passive and difficult to engage as an infant.

I’m not sure if it’s just the examples used in the point about finding everyday pressures intolerable, but Little Bear loves a school trip and his behaviour was exemplary the last time we went to the dentist so I’ve scored it as zero. I would say that he can find new situations or places anxiety provoking and that might lead to more dyregulation. However, I wouldn’t say that necessarily correlates with greater demand avoidance in those situations. It might, or it might not – I suspect it is more complex than just where we are at the time.

If the descriptor were to mean every day, seemingly inconsequential demands, such as eating, toileting or getting dressed, I would have scored it much higher.

The bits about taking on a role or communicating through props don’t resonate here. Little Bear has good imaginative skills and sometimes there are difficulties separating Fantasy versus Reality but I wouldn’t say he uses them as a means of communication or specifically to avoid demands. I think this is where social mimicry as part of an Autism diagnosis comes into play.

In terms of how Little Bear presents himself to his peers, he certainly doesn’t try to comply with them but not us. I would say he takes a blanket approach to demand avoidance and if anything, there is a slight bias towards doing what familiar adults say. The less attached he is to a person, the less likely he is to co-operate with them, be they child or adult.

In all honesty, I don’t know if he was passive as an infant, as we didn’t know him then, but I cannot for one minute believe that he was!

The other items on the questionnaire that I have scored as ‘somewhat true’ or ‘mostly true’ are mainly not scored more highly because the behaviours come and go or because they used to be a problem but we have seen improvements. I have read that children with PDA can fluctuate in their demand avoidance – becoming much more co-operative when they are comfortable and relaxed. I would say this is true for Little Bear too. If he’s struggling in general, the demand avoidance will be much more pronounced. It is to the point where we have had months of co-operation – where I could just say, “Please put your shoes on”, as I would to any other child and Little Bear would do it with a smile – and then times like we are currently experiencing where every tiny request feels like a battle and can all too easily lead to escalation.

I have gone on the hunt for information about demand avoidance in developmental trauma to explain why this would happen but it’s thin on the ground. The Beacon House information about trauma does say this:

  • Boundary setting can trigger a big reaction or noncompliance in child (where there are Attachment insecurities)
  • Prolonged meltdowns over small things (as a part of difficulties with Emotional Regulation)
  • Rule breaking at school
  • Unresponsive to day to day requests (often seen as non-compliance) (as a part of Behavioural Dysregulation)

I guess those things sort of add up to the levels of demand avoidance that we see but I’d be really interested in knowing how other children who have experienced developmental trauma score on the EDA-Q and how their scores are distributed across the descriptors. I can’t help feeling we don’t have enough information about this and at the moment and it would be difficult for clinicians to make informed differential diagnoses between PDA or ODD and demand avoidance caused by developmental trauma.

If anyone knows of any other sources of information I’ve missed, please get in touch.

The one thing that I can unequivocally say is that parenting a child with demand avoidance is a little tricky (I’m totally under-egging it) and that finding ways to manage and manage it, has us scratching our heads. I am very much still working on it but here are some things that sometimes work at our house:

  • Know your own triggers. It is very, very difficult to be calm when a child won’t do anything you say. I having to be conscious of the fact that this could cause me to snap and that I need to very deliberately react in a different way. I find this is much easier to do if you plan your response in advance, rather than just reacting when you are taken by surprise.
  • At the moment, the plan which feels most effective is not shouting and moving away from, not towards Little Bear. He needs the space and I am less likely to react negatively a bit further back, busying myself with something else. This more casual approach seems to help things simmer down. Little Bear tried to saw the table with a dinner knife the other day, in a bid to avoid eating his tea, but I barely turned around. I did calmly tell him that it was his choice whether he carried on doing it or not, but if he did, I would take the money from his pocket money to fix it. It wasn’t in a threat way – just a pointing out a logical consequence way to help him with his decision.
  • Self-care. I know people mock the concept but maintaining patience and calm in the face of zero co-operation is exhausting. We must look after ourselves (I’m talking to myself as much as anyone after a friend gave me a stern telling off!)
  • Allow much longer to get ready to go somewhere than you’d think necessary. This allows your small person to spend time avoiding and doing everything but getting ready while you gently steer them through the necessary tasks. Time pressure won’t help anyone.
  • Reduce the demands. There are certain tasks that have to be done but can you help by dressing or feeding or helping in another way? Other tasks, which are not essential, could be omitted for that day.
  • Often it is verbal demands that Little Bear can’t tolerate. Sometimes we manage to acknowledge this in advance of what is likely to be a tricky situation for him e.g. bedtime and are able to collaborate on a solution. We’ve found that things like having all the equipment Little Bear needs for a task laid out for him e.g. toothpaste already on the brush, pyjamas laid on the floor etc. means he can complete the whole routine himself without us needing to make any verbal demands. Visual supports like a tick chart or timetable can also work.
  • As mentioned above, careful wording of a command can help e.g. reverse psychology or a challenge. Unfortunately two good choices no longer works for us, because Little Bear has figured out he can just agree to neither.

 

I should point out that underlying the demand avoidance is likely to be anxiety of some kind – whether it be a fear of losing control or some other internal precipitant – so we should be mindful of this and manage the behaviour as kindly as we can.

I have to be honest and say that I am a little torn over demand avoidant behaviour. Half of me is extremely therapeutic about it and willing to be patient and accommodating. The other half of me thinks that one cannot successfully navigate life never doing what one is asked (employers and the Police certainly aren’t too keen on it) so perhaps there is some mileage in being encouraged to push through the difficulty barrier of wanting to avoid demands. I insisted, the other day, that Little Bear did carry out his reading before he went on an exciting day out. I insisted very quietly and patiently and had been specific on how many pages I expected (hardly any) but such was the strength of his need to avoid the demand that he would have given up his day out just to avoid the reading. We persevered and when he finally did the reading, we were able to praise him and make a big fuss for pushing through something we knew he was finding difficult. He was pleased with himself and had a lovely day out.

Isn’t this how resilience is built? By people believing you can do things you think you can’t and supporting you to achieve them anyway? Life for Little Bear is going to be extremely difficult if he can’t cope with the smallest of demands so I don’t see that lowering our expectations to zero will be of much long term use to him. I suppose, like everything, it’s a fine balance between being therapeutic and building life skills and we continue to hobble along the line.

 

Demand Avoidance

National Adoption Week 2018

Next week is National Adoption Week – a big push from the industry to raise awareness of adoption and to encourage would-be adopters to pursue it. This year the theme is ‘the adopter’ – who makes a good adopter and, from my perspective, what support do people need to succeed as adopters?

This is the third National Adoption Week since I’ve been blogging and it’s tricky to have a fresh perspective each time (the first year I blogged every day and last year I wrote The Little Things ) so this time I’ve asked the boys for some help.

Me: What should I say to people who might want to adopt a child?

Little Bear: Do it!

Big Bear: Do it because you’ll help save lives of children. You might regret it for a bit but it gets better and better and better.

Me: Is it something everyone should do?

Little Bear: Yes, because if they’ve not got good parents, they have to send them to good parents.

Big Bear: No, because you might be too busy or dangerous people shouldn’t be allowed. Parents need to be approved as good. It depends on their environment and home. They need to respect the child’s values.

Me: Is there anybody who shouldn’t be allowed to adopt?

Little Bear: Named a lot of people we know! I think this question was too abstract.

Big Bear: They can’t judge a child on colour or how they look. You need training. It doesn’t matter about shape or size. You really just need to be able to protect a child.

I think you can tell Big Bear has been learning about values and diversity at school. Or perhaps he has a future in politics.

Me: Have you got any advice for people who adopt children?

Little Bear: You should be nice and take care of them.

Me: Was there anything we did that you didn’t like? That we should have done differently?

Little Bear: You guys were really bossy but now you’re just perfect.

I suspended the interview at this point to smother him in kisses and tell him he is perfect too.

Big Bear: You can’t give children everything they want, just what they need. Help them. Support them. Ask if there is anything wrong. Don’t be violent to your child. Take it easy to start with. Don’t talk about horrible stuff.

Little Bear: Yeah, don’t let them see scary things.

*

Between them, I think the Bears have raised some salient points. Firstly, adoption is not for everybody, they’re right about that. Adoption is life-changing. I don’t see the point of lying to people in an attempt to snare them, only for them to find out the realities when it is too late. Adoption is challenging in all regards – emotionally, practically, financially. It is rarely a fairy tale. Adoption requires you to open your lives, not just to a traumatised child, but to the wider birth family who inevitably come with them. If you think they don’t come with them or that a child can just forget their past once they’re with you, adoption is not for you. If you do not believe in attachment theory or the impact of developmental trauma on the infant brain, adoption is not for you. If you believe that a child’s needs can be resolved by love alone, adoption is probably not for you.

However, if you are prepared to educate yourself in ACEs, trauma and therapeutic parenting, and you are willing to put yourself in the shoes of your child and are prepared to try your best to look at the world from their point of view, you might find out how amazing adoption can be. Adopters need resilience, a willingness to learn, a preparedness to fight for their child if circumstances require it, an open mind and an open heart. An ability to persevere helps and so does keeping going, no matter what. If you have not yet turned away or come out in a cold sweat, maybe you could do it?

I think there are some members of the adoption industry who are unwilling to tell this truth through fear of the damage it will do to recruitment of adopters. My view is increasingly that if people are put off by a few truths, they are unlikely to be cut out for adopting. We need people to go in with their eyes open, because discovering you can’t do it or it isn’t quite what you thought it would be once you’re already in, causes irreparable damage to all parties.

I don’t mean to point fingers – to some extent there will always be unknowns. There is the unavoidable disparity between understanding something in theory and experiencing it in practise. There is the unpredictable impact of moving a child from foster care to their forever home and all the additional losses that come with that. There is the unavoidable risk of relying solely on the information that is provided to you.

Risk cannot be fully mitigated in adoption.

However, I truly believe there will always be people who are willing to take these risks; people who won’t see the risks but the possibilities. Those people, they are the ones who are needed.

Everything in life is a risk isn’t it? Conceiving and given birth is riddled with risk but we tend to err on the positive when we talk about those. Riding motorbikes is risky. Buying shares is risky. Extreme sports are risky. Debts are risky. Crossing the road is not without risk.

We decide where to put our risk; when to roll our dice. We choose which risks are the ones we want to take. Which ones feel like calculated risks and which are a risk too far. I am one of the most risk-averse people you could meet. I wouldn’t roll my dice on debt or drugs or bungee-jumping or extreme-anything. In truth I’m hyper-aware of risk, worrying far too much about terrorism, planes falling out of the sky or getting squished on the motorway. But I took the risk of adoption. I informed myself so it was a calculated risk. I embraced everything about the idea of it, risks and all, because, for me, I believed it would be worth it. I believed it would be more than its risk. And it has been. So much more.

Adoption has been life-changing for us, in every way. Big Bear has become a brother through adoption. He has grown stronger and more self-assured because of adoption. He was always going to be a kind and empathetic young man but adoption has made him even more aware of others – the ways in which they might struggle, the ways in which he has the power to change outcomes for them through his words and actions and the ways other people’s lives might differ from ours. He’s very emotionally astute for a nine year old and I think adoption has played its role in that.

For Grizzly and I there is the obvious impact: we have gained another son. A son who drives us up the wall at times, who has found buttons we didn’t even know we had and pushed them, then pushed them again. A son whom we love entirely, just as he is. A son who we are immensely proud of and who brings each one of us joy, every single day. A son who is the funniest, kindest, most determined young man you could wish for.

Adoption has completed our family. It has brought our parents another grandchild; my brother another nephew.

For me, adoption has taken my career in new directions. It has led me to writing.

And as for Little Bear himself, it’s kind of hard to quantify. I don’t want to perpetuate the myth that adopters are like superheroes, saving children from a lesser life. There are no capes or bulging thigh muscles here and we don’t wear our pants on top of our clothes too often. There is no heroism in losing your temper or the natural mess of our daily lives. But it is possible to think about Little Bear’s starting point and the ways in which being adopted have undeniably changed his trajectory. He has gone from being a three and a half year old functioning at a 16 month level to a keen, enquiring and capable 6 year old. He has gone from attending a special educational needs nursery to literacy, passing through and leaving behind the lowest group in his mainstream class. Expectations for his future have gone from zero/ worrying to certainty he will succeed in a field of his choosing.

Adoption means Little Bear aches for his birth siblings. It means he has a lot of questions and we don’t always have the answers. It means he sometimes feels different and wonders where he belongs.

Adoption has given Little Bear stability, safety, self-belief and certainty. It’s given him a forever home and a family who will fight wolves empty-handed for him, if necessary.

Adoption has been life-changing for us all.

I can’t tell you to do it and I can’t tell you not to do it. It’s your risk.

If you think you can do it, do your research. Know the type of risk you are considering; arm yourself with knowledge.

I can tell you this: you cannot do it alone. You can be a single adopter, of course, but you need your people for the days when you don’t feel well or when your little darling has driven you three times around the bend. You need an adoption agency with proper, robust, actual post-adoption support for the times when only a reassuring, experienced professional will cut it. You need to acquaint yourself with self-care; what works for you, how much and how you will know when you need it, because adoption relies fully on you being okay.

Adoption is not the right route to parenthood for everybody. But if you like your risks with a high likelihood of progress, satisfaction and pride, it could well be the route for you.

National Adoption Week 2018

New Teacher

You may have gathered, from my last few posts, that Transition has been the theme of the summer season here. See This Year, Last Year Fear of Loss if you don’t quite know what I mean.

Little Bear’s angst has been building for several months in anticipation of moving to Year 2 and getting a new teacher, reaching its zenith this week when the Big Move actually happened.

The first we knew about Little Bear’s sense of impending doom was in April-time when he announced he was scared of the Year 2 teacher. I’m going to call him Mr Jones for ease because Mr New Teacher is already feeling unwieldy. Mr. Jones seemed, from what little I knew of him, to be perfectly nice. He does, however, cut a substantial figure. I don’t mean he’s overweight but he is certainly taller than average. Grizzly is also a taller man so I wouldn’t have thought it would have been particularly noteworthy for Little Bear but evidently the broader build, deep voice and towering height were creating some level of fear for Little Bear. I suppose he must seem giant-like to a 6 year old.

We tackled this by chatting with Little Bear’s Year 1 teacher (whom I have never gifted with a pseudonym but I am feeling sufficiently guilty as to rectify that right now. She can be Mrs Potter henceforth.) Anyhow, we made the teaching staff aware and they made sure that Little Bear spent more time with Mr Jones in a non-threatening way. Mr Jones is a bit of a joker and told Little Bear that he doesn’t bite; not hard anyway. Little Bear found this pretty funny and it was one of the rare snippets of school he actually shared with me. Over time Little Bear got more used to Mr Jones until one day he announced he wasn’t scared of him anymore.

This was great but such was the state of Little Bear’s anxiety that where one fear was allayed, another immediately crept in. Now that Little Bear had allowed himself to accept he really would be going to Mr Jones’ class, the realisation hit that he would consequently be leaving Mrs Potter behind.

As for any child who has experienced severed relationships and developmental trauma, the loss of another key person is very triggering – it drags up the emotions of previous losses, wobbles the present and makes you question the certainty of the future.

I don’t think I’m over stating the situation when I say that Little Bear loves Mrs Potter. She has played a big role in his life so far. She visited him in pre-school and was a key person in his transition from pre-school to Reception class. She set him on course for his whole formal education. She has been responsible for him learning to read, write, do Maths. She has stayed with him for two full school years and in that time has been a safe, trusted adult who has stuck with him through some pretty testing times and challenging behaviour. Little Bear adores her and Mrs Potter makes it clear to him that the feeling is mutual. No matter what.

It was completely understandable that Little Bear would be bereft to leave her. To be quite honest, I was also a little bereft. It’s no secret that navigating the education system as the parent of an adoptee is tricky. It can be extremely difficult to get the system to understand your child rather than wanting to constantly change them. As a parent of a child with additional needs, it can be hard to get your voice heard and to be recognised as an expert in your child and seen as a valuable member of the team. At times in Little Bear’s education so far, I have struggled with all of these things. I have also had moments of utter panic at the level of Little Bear’s delay and how on earth he will ever manage to catch up (see LINK). Throughout these challenges, Mrs Potter has always been there. We have somehow managed to develop a really honest and mutually respectful relationship, something which I know is difficult to achieve. I also felt the fear of leaving that safety behind and taking a large leap into the unknown. I felt the fear of having to work really hard to create that relationship again, with another teacher, as well as instilling in them the same level of understanding of Little Bear as Mrs Potter now has.

This transition was a Big deal for all of us.

We tried to allay Little Bear’s fears by reassuring him that Mrs Potter was not disappearing from his life. She would just be next door, in her classroom. He could go to see her whenever he needed to. We (Mrs Potter was very involved in this) reassured him that she would not forget him and that she would still love him, even when he was in Mr Jones’ class. Little Bear and I made a present for Mrs Potter. I made a big deal of how she would think about him every time she looked at it and Little Bear really did pour his love and a few of his other feelings into the picture.

Little Bear started to feel better about moving on from Mrs Potters’ class but such was the state of his anxiety that where that fear was allayed, another crept in.

When we were getting organised with teacher gifts, I made sure to get one for Mrs C, Little Bear’s TA. Although she was going with Little Bear to Year 2, I wanted to thank her for everything she had done for him so far. Of all the teachers in Little Bear’s life, Mrs C has been on the biggest journey. I feel okay to say now that when they first met it was something of a personality clash. It was a disaster and I genuinely believed the wrong appointment had been made. I suspect Mrs C was pretty confident in thinking she’d easily sort Little Bear out with a bit of firm discipline. However, it was more like a head to head stand off and the harder she went in, the more he resisted and the more creative he became in testing her boundaries. I’m pretty sure he gave her the full works, including a few kicks and scratches and caused her to go home in despair on a daily basis, wondering why on earth she had taken the job.

However, I have to credit Mrs C with a very important trait: she has been willing to listen and to try something different. She was prepared to persevere and she stuck with Little Bear where others would certainly have thrown in the towel. She changed her approach, she read what we gave her, she listened and she has now become another trusted and consistent adult in Little Bear’s life, who understands him and is able to effectively support his learning. I would now be absolutely gutted if she left and feel as though she is the crutch that will bear the weight of this transition for Little Bear.

As such, I felt it was important I expressed my thanks. When I mentioned I had got her a gift, a flash of panic darkened Little Bear’s face. “Mrs C is going with me to Year 2 isn’t she?” he asked, evidently fearful she wasn’t. Yes, we reassured, she is. However, over the course of a few days, Little Bear made more comments indicating he thought she wasn’t really. I suppose it is hard to fully trust even your trusted adults when you have been so let down before.

On the last day of year 1, I didn’t really know how Little Bear would be but taking his gifts in seemed to be a handy distraction. Mrs Potter cried over him several times and both she and Mrs C gave him a cuddle in exchange for their gift. Little Bear was absolutely made up that they loved their gifts and evidently Mrs Potter let him believe that his gift was her favourite.

Surprisingly, the day ended much more positively than I had anticipated and much more positively than the end of Reception class which had involved a lot of throwing and screaming. I couldn’t even see Little Bear when I went to pick him up and it turned out he was so nonchalant about the whole thing he was busy sharpening his new pencil instead of being upset. Mrs Potter had bought each child a notepad, pen and pencil and Little Bear was so delighted that he came home and immediately started writing?!

Then, that Friday night, at 5pm, Mrs Potter and Mr Jones both came to visit Little Bear at home. This was absolutely above and beyond the call of duty and not something they usually do. However, because they understood Little Bear’s anxieties and are prepared to do things differently to help him, they wanted to. Little Bear loved the visit and I really feel it assuaged his worries. We had the calmest weekend we’d had in several weeks. It felt particularly poignant because it reminded me of when the foster carers came here to visibly give Little Bear their permission to be happy with us. I felt Mrs Potter was visibly saying “Mr Jones is taking over now and he’s a safe person too. I am ok with you being happy in his class” and that was so much more powerful happening in our home.

The preparation had gone as well as possible but we were in no way complacent. We had no idea what Monday morning would bring.

It actually brought a very happy Little Bear who was excited to be in Year 2. He skipped straight in without a backward glance.

My anxieties rose a little after school because Little Bear did his usual trick of not telling us anything that had happened/ telling us a clearly fictitious version. Later in the week I made sure to have a quick catch-up chat with Mr Jones – both to set the expectation that we need to be in regular touch and also to put our minds at rest.

Obviously I am far from having the relationship with him (yet) that I had with Mrs Potter but the chat felt positive. Mr Jones doesn’t feel Little Bear is testing him which is a good indicator that Little Bear feels safe and settled. Mr Jones has been laying out his boundaries but has not removed Little Bear from class or used any cards. He told me that Little Bear had not engaged well with a particular task but he had evidently gone away and pondered why that might have been and then asked Mrs C’s thoughts, knowing she has more expertise when it comes to Little Bear. I feel these are good signs of willingness to listen and look beyond behaviour and hopefully bode well…

I don’t want to count my chickens (especially after our recent fox-induced henmageddon) but at the moment it looks as though the anticipation of the transition was the biggest problem for Little Bear and that the measures everybody put in place to support him helped a lot. I have been really touched by the level of support we have recently received from school – it has come from a place of genuine care. As well as thanking the individual teachers, I have now e-mailed the Head Teacher to make sure he knows how hard members of his staff have worked and what a difference their commitment and support has made to us. I would be quick to speak up if the right support wasn’t in place for Little Bear so I feel it’s imperative that I am also willing to speak up when things are done well.

I am under no illusion that year 2 will be plain-sailing. Mr Jones has already discussed his aim of taking Little Bear from working towards Year 1 levels to achieving expected levels for year 2 in a year’s time. This is no mean feat and I don’t honestly know if it’s achievable. We also have the spectre of SATS on the horizon and a school residential. But for now, on the wind-down to the summer holidays, I am grateful for having got this far. The new teacher, myself and of course Little Bear are all taking our first tentative steps into this new situation. I just hope that we find a way to walk together.

 

New Teacher

Transition

Transition is usually a concept that people begin discussing in the summer, as term time draws to a close. However, in conjunction with Little Bear’s school, we have decided to begin working on it and talking about it much earlier than that. In fact, Little Bear’s transition to Year 2 has already begun.

Last year, when he moved up to year one, he did pretty much what the other children did: spent that last two weeks of the summer term in his new classroom. This seemed ok at the time. In fact, it seemed pretty good because most schools don’t transition before the summer holidays, just going straight to their new classes afterwards. However, in reality, we hadn’t done anywhere near enough work and planning around the transition and things went pretty pear-shaped (see Adoptive Parent: Behaviour Detective  & School Worries).

My personal feeling is that getting a TA was the biggest difficulty for Little Bear. Obviously it’s brilliant that we managed to secure funding and he certainly needs the support. However, from Little Bear’s point of view, a new adult, who he had never met before, appeared and went everywhere he went. She told him what to do and he wasn’t too sure whether he trusted her. He didn’t know what the rules were with her – were they same as with his teacher or as with mum and dad? Would her rules be the same every day? What would happen if he didn’t do what she said? Would she shout? Would she just let him do anything he wanted?

The only way to figure all this out, if you’re a child who has experienced trauma and loss, is do all the things you’re worried about and find out. If you test a person who isn’t prepared to be tested and isn’t quite sure what you’re doing or why you are kicking them or refusing to do anything they say, that person might find it all a bit tricky to navigate. That person probably won’t know how to react and may try different things on different days. Because they are not consistent in upholding the rules or dealing with your behaviour, it is likely that as a child with developmental trauma, you will feel unsafe. When children feel unsafe, they go into survival mode: fight/flight/ freeze or flop. In Little Bear’s case, it was fight mode and hence his behaviour escalated for a while.

This is not a scenario that we are keen to repeat at the beginning of year 2. On the positive side of things, Little Bear’s TA, Mrs C, has worked really hard to understand him and to support him in a way that works. Their relationship has now settled and they work really well together. Little Bear’s behaviour has improved dramatically and he is learning lots. Mrs C is going to move to year 2 with him which should provide him with a good level of stability.

However, Little Bear will be moving classrooms and he will have a different teacher. This will be a big deal for him because he has had the same teacher throughout Reception and Year 1 and he loves her. One of the big problems with transition for children who are Care- experienced is that moving on usually involves saying goodbye and that can trigger all sorts of issues from their earlier lives.

Not only will leaving her behind be hard for him but it will inevitably mean getting a new teacher and having to get to know a new adult who Little Bear won’t be sure whether to trust or not. We could have all the issues I described above again. Thankfully, no one wants that to happen and as school were so shocked by what they witnessed from Little Bear last time, they are keen to do better this time.

Little Bear himself is all too aware that he has to go to a different class at some point and has been expressing his worries to us for a few weeks now. He is scared of the new teacher and doesn’t want to leave his current one. Although his grasp of time has improved, it is still not fabulous, so telling him how many weeks or months he has left in year 1 doesn’t seem very reassuring for him. Instead of waiting until nearer the time, we have decided to start preparation now as the best means of reassuring him and reducing his anxiety.

I thought it might be useful to share our transition plan and all the things that are happening that will hopefully help Little Bear with moving on:

  • Today we had an official transition meeting. It was attended by us, Little Bear’s TA, his current teacher and his next teacher. We shared concerns and crucially told the new teacher about relevant background information. This didn’t happen with Mrs C until after she had been working with Little Bear for a while which was a backwards way of doing things and did impact upon her ability to understand him and set her expectations of him. In order to understand Little Bear’s behaviour, it is essential to know key factors in his background that precipitate his current behavioural and emotional challenges.

I think Mr. New Teacher seemed a little shocked.

  • We also shared tried and tested strategies that are currently in use at home and at school for supporting Little Bear. We talked about allowing him calm down time before discussing his behaviour with him; consistent and clear boundaries; praise; the need for repetition and managing dysregulation amongst other things.

 

  • Little Bear knew we were having this meeting, as he always does when we have one and as much as possible I put a positive spin on them so that he knows they are about helping him and making sure he feels safe: I don’t want him to think it is a chat about all the ‘bad’ things. We always ask him if there is anything he wants us to say to the teachers or to ask them about.

 

  • Little Bear has been going into his future Year 2 classroom for a few weeks now with Mrs C. Initially they popped in to do ‘jobs’. They have since stayed in there a little longer and explored the toys and books. More recently he has been going in during his 1:1 time to complete his work. Mrs C has started popping out for a few minutes on the pretence of needing to do something so that Little Bear gets used to being in there on his own. This is clever because Little Bear still has a tendency towards opportunism and he may be tempted to see what he can get away with without Mrs C by his side. It will give Mr New Teacher the chance to start laying out his boundaries.

 

  • Over the next weeks, the plan is for Little Bear to spend more time with Mr New Teacher so that they get to know one another better. Little Bear has already shown him his work a few times when he has done something good, which is a very positive interaction for them to have.

 

  • Before the two week transition at the end of term, Mr New Teacher is planning to visit us at home for five minutes so Little Bear can see that we trust him and that we have a relationship with him too. The consistency across all settings and people is so important for Little Bear and we hope this visit will make him feel safer. He will also love being able to introduce Mr New Teacher to our pets etc.

 

  • Little Bear’s current teacher has been talking about the transition with all the children and reassuring them as a class.

 

  • The teachers plan to put together a ‘transition pack’ for Little Bear with photos of the new classroom, teacher etc. for us to look at over the summer.

 

  • The school are aware of the need for Little Bear to still have contact with his current teacher once he moves to his next class so he will have the opportunity to pop into her classroom for ‘jobs’ or to share work and equally she will pop to see him.

 

The plan feels fairly comprehensive and I’m really grateful school are facilitating it. The biggest risk factor is whether Mr New Teacher listens to what we have said about the best ways of supporting Little Bear in class or whether he will feel preached at and will just want to try things his way. We know, from bitter experience, that new adults tend to wish Little Bear came with an instruction manual. He doesn’t, but we have cobbled one together over the years and if the willingness to listen is there, so too are the effective strategies.

Transition

Parenting in Public

The actual title of this post should be ‘Parenting a Child with Behavioural Difficulties in Public’ but it’s kind of unwieldy and somewhat lacking in zing. It is what I mean though as ordinary parenting in the public eye is not especially challenging, in my experience.

As we are now coming to the end of week 6 of the summer holidays I have been spending more time than usual out and about with Little Bear in public. We have been to all sorts of places: shops, museums, LEGOLAND, the beach, restaurants, the zoo, parks. Sometimes it all goes swimmingly and there is nothing significant to report but at other times I end up feeling more conspicuous than I would really like.

I think it is partly because Little Bear’s behaviour is at a developmentally lower level than his chronological age. Whilst this is common amongst children who have experienced developmental trauma it can nevertheless look incongruous to the untrained eye. I’m wondering if it has become more pronounced because Little Bear has had a growth spurt and for the first time since he has been with us he is requiring clothes larger than his age. He is a tall 5 and half year old who frequently engages in behaviour more typical of a pre-schooler. Today, for example, we went to the garden centre and he spent a happy 10 minutes going from water feature to water feature putting his hands in and splashing about in them. I can remember Big Bear doing exactly the same thing but he was probably a couple of years younger.

Ditto pointing obviously at people who look different and/ or commenting loudly within their earshot: Look he’s got a bald patch!

Why’s your tooth broken? (Whilst staring at close range into an elderly lady’s mouth when sharing a hand dryer. Thank goodness for unclear speech).

Why does that lady have her belly out mummy?” (Bellowing and blatantly pointing at someone about 3 feet away).

I don’t know son, but perhaps she should ask herself that.

While these developmentally younger behaviours do draw some attention and can be mildly embarrassing, it is the more unusual or more unexpected behaviours that I usually find harder to style out.

Sometimes a waitress or passer-by might be friendly towards Little Bear. They might comment on his outfit or try to chat to him about something and, one assumes due to his attachment difficulties and mistrust of strangers, he can be downright rude. He might not answer them or he might scowl or he might say something like “go away”. I find myself being extra friendly or making some sort of excuse for him.

Little Bear can behave similarly with other children and sometimes he seems to square up to them or tries to stare them out.

Conversely he can be over friendly and will approach people and even lean on them or touch them despite not knowing them. He frequently approaches people if they have babies with them and will try to push the pram. Today he somehow got another Mum whom we didn’t know to push him on the swing (I had turned for a couple of seconds to greet our actual friend).

Little Bear is also quite hyperactive and inquisitive. This tends to lead to a lot of touching of things he shouldn’t, climbing on things he shouldn’t and general wildness. Today I have had to coax him out of a dog basket that he had pulled off the shelf and curled into in the middle of a thoroughfare and also lift him down from a wire gazebo which he had scaled and was hanging from the top of. He hangs off counters in restaurants and cafes and if there is any sort of railing he will be doing roly-polies on it (there is one inside Asda that he is particularly attracted to).

Though he tries his best to stay seated when we go out for meals it is very difficult for him and he does get up and move about. Sometimes he gets under the table. On one occasion he commando crawled under a public toilet door – Big Bear thought it was brilliant and all I could think about was how many germs he had touched en route.

During our holiday we stopped at Services that had a quiet Starbucks and he spent the first ten minutes crawling laps around a long bench seat in there while we tried to maintain a sense of decorum (and tried to pretend he wasn’t with us).

He often runs inside shops and restaurants and might try to pick something up that he shouldn’t e.g. in Sainsbury’s he might start kicking a ball around the aisles if he sees one for sale.

Sometimes Little Bear has public outbursts. Today, whilst in a busy queue at the ice cream kiosk at the park, Little Bear lost his temper because they had run out of the ice cream he wanted. He wouldn’t choose anything different and purposefully ran over his brother’s foot with his bike. When I told him to get off the bike, he kicked it, the wall and attempted to kick me. I could practically feel the anticipation and judgement of the other parents around me, tense with wonder at how I would surely punish him. I guess they were probably quite disappointed when I didn’t (you try juggling a cup of tea, an ice cream, a balance bike and a dysregulated child. Also, I could have lectured them in the pointlessness of punishing a dysregulated child but my hands were quite full).

Now, here is the crucial bit, clearly I do not think that any of this is acceptable behaviour. I was brought up to be polite and well-mannered and try to instil that in my children too. Of course I would prefer it if they would both sit still, be quiet, react politely and not draw excessive attention to us.

If I’m being really honest, when Little Bear first arrived and his behaviour was at the more extreme end of things, I frequently felt like stopping members of the public to say “don’t judge me, he’s adopted. I didn’t make him like this!” (Don’t worry, I never did and I do know it isn’t an appropriate way to handle things!).

In an ideal world my child wouldn’t pelt up and down pubs, make loads of noise or throw things. However, in an ideal world, my little boy wouldn’t have been neglected. He wouldn’t have an uphill struggle ahead of him and his development would not have been adversely affected by his start in life.

I can’t set ideal parenting standards for Little Bear (at the moment) because good parenting does not involve setting your child up to fail. I cannot ask him to sit still throughout a meal, be friendly and polite at all times, always walk and never run and never touch anything. I can’t ask that of him because I know that he is already trying his best and he can’t do it.

I have had to re-evaluate what is absolutely essential behaviour-wise and what is less so. I have had to decide which things I can turn a blind eye to and which things I will tackle. I can’t tackle everything at once because I would be telling him off every minute of the day and that is no good for anybody. For now I have a zero tolerance approach to violence and we try our best to follow instructions the majority of the time. Other issues are for later.

My parenting style with Little Bear can be summed up by “don’t sweat the small stuff” and “pick your battles”.

The only problem is that Mr and Mrs Public are not versed in this approach and actually often do want to sweat the small stuff. Last week, Little Bear got told off twice by strangers. The first time it was because he had lifted a glass lid in a café to show me which donut he wanted. The waitress walked past and sharply said “that is made of glass! It is not for you to touch!” The second time was because he was climbing on a wooden railing inside a family pub and the waiter sternly told him to get down from there.

As I was present on both of these occasions and the person in question saw fit to tell Little Bear off anyway, I can only assume that they felt my parenting was lacking. Were I to have the time or inclination to concern myself with this, I would probably be quite offended. However, thanks to Little Bear, I don’t bother sweating the small stuff either.

I can feel a bubble of something brewing though. One or two interventions from strangers I can take. A stare or glare here or there I can ignore. Maybe even a tut could be disregarded. I know that people are judging Little Bear against their standards of behaviour and finding him lacking. I know that consequently they see my parenting as lacking. I have grown a thicker skin and am mostly adept at shrugging it off. I am confident on the path I am taking and I have the benefit of understanding his behaviour, what could be causing it and also seeing the incredible progress Little Bear has made.

However, I know there is a line when it comes to strangers telling off my children and should someone see fit to cross it, I would not be able to hold back. Don’t be so bloody judgemental, I would want to say, you don’t know his background; you don’t know what he has been through. Don’t judge my parenting. Try walking a few steps in my shoes and then see how you feel.

My inner momma bear is poised, ears pricked up. Ready. Little Bear is my cub. He is my noisy, energetic, curious, infuriating mischief of a cub but he’s my cub and he’s trying his best and I will not hesitate to leap to his defence if provoked.

Consider yourselves warned Mr and Mrs Public. Consider yourselves warned.

Parenting in Public