Reflections on our enforced home-schooling (so far)

I have never wanted to home school my children. I just need to put that out there, from the onset. I have always greatly admired those who do, certain in the assumption that I’d lose my mind in a similar position. Yet here we are, ten days in to home-schooling, with no foreseeable end in sight. It would seem that I am, despite my protestations, actually home-schooling my children.

What is possibly the weirdest thing to come out of all this so far is that I don’t hate it. I think I might even (whisper it) like it… I don’t mean in a permanent kind of way but in a ‘this will be fine for now’ kind of way. I have made similarly ridiculous statements before and lived to regret it shortly afterwards, so that could still happen here, but, so far, it’s honestly not so bad.

As a not in any way seasoned home-schooler, I thought it might be interesting to share some of the things I’ve learned on this crash course and just some of the random thoughts I’ve been having since getting forced onto this journey.

 

Timetabling

Now, as a visual support-touting speech and language therapist, you’d think the first thing I’d have done would be to make a large, colour-coded, laminated timetable. Well, I didn’t, because, quite frankly, I didn’t want to. The idea of being hemmed in to set lessons at set times for weeks and weeks into the future filled me with more dread than the idea of just seeing what happened. I am sure this wouldn’t be the right approach for all children. Some would certainly benefit from more structure.

But here, well, there were a few things I was worried about. Firstly, boredom (see Variety Is The Spice Of Life section). Secondly, the new set-up being too school-y. BB in particular has not been enjoying school recently. He’s in year six, which as far as he or I can tell, is just about past SATS papers. He badly needed to break out from that kind of schooling and this, although arriving through dreadful circumstances, could be just the escape he needed. Right from the start I saw this could be an opportunity to turn the childrens’ concept of schooling on its head. For that to happen, I wanted a bit more of a free-flow approach. I wanted the children to be able to steer their learning and for us to seize opportunities as they arose. I wanted lessons to take place in different locations and not to always feel like lessons. I wasn’t sure this could be achieved within the confines of a timetable. So I didn’t make one. I figured the worst that could happen would be everything going awry and me having to make one later – a risk I could live with.

I have tried to keep some loose structure though so LB in particular knows where he’s at. School starts at 9am every day. There is always a mid-morning break and lessons generally finish by lunchtime. After lunch, we go for a walk with the dog (sometimes weaving in some sneaky learning that doesn’t look like learning while we’re at it). Then everyone has a rest. Tea is always at the same time. Reading always happens at bedtime.

 

Model Learning

Coincident with the schools closing, I read a tweet thread by eminent psychotherapist Philippa Perry, in which she gave some tips for parents thrust into home-schooling. She suggested allowing children to teach us something so that teaching doesn’t become something that happens to them (or even worse, is forced upon them). She pointed out that children need good role models of how to interact with learning; how to respond; how to be enthusiastic and enquiring. I wasn’t really sure about it but figured there was no loss in giving it a go. So far, I’ve been taught how to play darts and Guitar Hero, how to make robots out of KNex and a lot about Pokemon. During the robot-building with LB, he kept reassuring me, saying things like, “this is tricky – you won’t cry, will you, if you can’t do it?” which was interesting. I was able to show that even though it was tricky for me, I didn’t mind getting it wrong and I didn’t mind having to try a few times.

I like this tip. I think it can be really powerful.

 

Variety Is The Spice Of Life

The thought of being trapped in one place for an indefinite period of time, doing the same thing, day after day would be overwhelming for anybody. Although I think it is good for children to experience boredom and find creative ways of entertaining themselves, I don’t want anyone getting the impression we’re now imprisoned. So, my approach is to keep things as fun and as unexpected as possible. Sometimes learning is at the kitchen table. Sometimes it’s in the garden or on the floor or in the playroom or in the office. Sometimes learning involves a pen and paper, but more often it involves paint or cooking or an experiment or a YouTube video or a book or a globe.

Similarly, although I’m having to carefully manage the food situation so we don’t run out and stay away from shops as much as possible, now seems like a good time to try different dishes. Yes, we will end up eating a lot of pasta, but they won’t notice if it’s interspersed with lots of different things.

This same approach has led us to doing some things we never usually did before, like a spontaneous disco in the living room one Saturday night which was easily the best night I’ve had this year.

 

Get Resourceful

I’m not a hoarder, but… Let’s just say I certainly haven’t Marie Kondo-ed. I know it’s sad, but I’m kind of enjoying the challenge of coming up with entertaining activities using only what we already have in the house. It’s a bit like on Ready, Steady cook where the challenge was making a meal from a limited choice of sometimes very random foodstuffs. I’m the sort of weirdo who likes that type of challenge. I think it’s partly because, like many of us, I have been wearing the guilt-cape of the over-privileged. We have a lot. We have too much. The world didn’t need us to buy so many toys or art materials. The guilt felt worse because many things stood there unused as the boys grew or couldn’t be distracted away from screens. Now is the time to use all the stuff and it feels quite wholesome and satisfying.

Case in point: I discovered two bags of mini eggs and all the ingredients for Easter nests at the back of a food cupboard yesterday and it’s honestly made my week. Down with minimalism I say!

On a similar note, I’m thinking really carefully before I throw things away or recycle. I now have a stash of jars/ plastic containers/ toilet roll tubes. I don’t know what I need them for yet but I do enough searching for craft/science activities on Pinterest that I’m bound to need them at some point.

Also, food waste. BB and I made guacamole the other day and realised the avocado pits gave us an opportunity to try growing them into plants. I also have some carrot and onion ends in water on the window ledge – apparently they’ll re-grow so we’re waiting to see if that really is the case. These are the sorts of opportunities it is more difficult to seize if your day is heavily timetabled.

 

A shift of approach

Let’s face it, I could have made the children use all our accumulated stuff before but, during holidays, I think I have always felt a pressure for them to have fun. I think when my activity suggestions have been met with eye-rolling, I have tutted and backed off, suggesting they find their own entertainment instead. Thus they have made their usual choices and the stuff has remained redundant.

Although I absolutely do want them to enjoy home-schooling, I do kind of have them cornered. BB is all too aware of the massive stack of past SATS papers on the shelf that he knows full-well I’m within my parent-teacher rights to make him do. Ditto LB and his pack of fractions and grammar. We have this informal agreement that I’ll keep the lessons fun if they remain engaged. If they don’t, well, I need only nod towards their school packs.

Miraculously, they are now a lot more interested in the random activities I invent after rummaging about in cupboards. And we all feel like we’re winning.

 

School of Life

If ever there were a time to teach children life skills it’s now. On the first day, we had a chat about how unusual it is to live and work and go to school in the same place. We talked about how if everywhere gets too messy, we will all feel stressed and trapped. We agreed that doing jobs around the house is an important part of the new home-schooling scenario and that sometimes, I would ask them to do a job instead of doing a sum. They seemed ok with it and certainly, since then, I have asked them to do things such as set the table, hang the washing out, put their clothes away, help with cooking etc. and so far, I’ve had far less resistance than I would have previously. I don’t know if I can explain why that is other than something to do with them feeling we are a team and something to do with knowing you have to do what you’re asked at school (and maybe the stack of school work on the shelf?!)

LB has certainly already become more independent which has been amazing to see. A couple of times, he has gone out of his way to help me with something without me even asking. That has literally never happened before.

I also wonder whether I’ve had a shift of attitude too. Usually I work part-time. I have lots of time at home when they’re at school to do house-work stuff and we have a cleaner. When they’re home I feel a bit guilty asking them to do things that I have plenty of time to do myself. Now that I’m suddenly a full-time teacher-cleaner (she’s furloughed for obvious reasons), it seems a lot more necessary to share the tasks. I feel as though everyone should help, so I’m more pro-active in asking them and they’re really stepping up.

It means they are learning things like how to use the kitchen appliances and how to cook, that I may well not have got around to teaching them otherwise.

 

Thank God for Fresh Air

No words of wisdom, just, thank goodness for air and trees and open spaces. And also the dog. She certainly adds to lockdown in a good way.

 

Measures of success

I strongly believe that surviving this pandemic is largely going to be down to attitude. Obviously you should stay home and heed all the medical advice – that’s a given. But once you are properly locked-down, your next priority is everyone getting through these extraordinary circumstances with their mental health intact. If that means un-schooling and playing play station all day, do it. If it means timetabling every day down to the second, do it. What works for each family will be different. The things I’ve talked about here are the things that work for us. Too much structure and the kids would be rallying against it (hello Demand Avoidance ), too little, we’d have some sort of feral Lord of the Flies scenario on our hands.

What I’m saying is, the only measure of success for this period should be everyone coming out the other side of it, as intact as possible.

They might be able to operate a washing machine or have learned some Spanish, but those things are bonuses and shouldn’t be the measures we’re checking ourselves against. Every day that I don’t lose my shit is a success. Every day that the children largely do what’s asked of them and enjoy their learning, is an amazing bonus in these trying times. Don’t skip over these moments – it has never been so essential to find the silver-linings.

 

 

 

 

*I am fully aware that much of my stance on being resourceful comes from a place of privilege. Resourcefulness is nowhere near such a romp if you don’t know where the next meal is coming from or your cupboards are bare.

**Also fully aware that not working at the current time is of itself a privileged position. I have absolutely no idea how people are supposed to home-school and carry on their paid work simultaneously. Hat’s off.

 

 

 

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Being an SEMH-needs family

I suspect this blog is going to be hard to write without coming across badly. I know what I want to say, but it will require an honesty most people may not be comfortable with. You see, when you discover you have a child with SEMH (social, emotional or mental health) needs, you enter this weird dark underworld where reality shifts a little, standards become idiosyncratic and parenting as you thought it might be is turned on its head. You don’t just have a child with some needs; you become a family with needs. Each one of you now has SEMH needs to think about, contend with, manage. You might not have them inside of yourself and I’m not for one minute saying that those of you around the person with the needs suffer as they do, but you do all now experience life with SEMH needs in your pocket.

Some things go without saying (but I shall say them, for clarity): everyone loves the person with SEMH needs. They remain your child, brother or sister, grand-child, niece or nephew and you love them as such. They remain a fun, kind, clever, gorgeous human. Their SEMH needs do not define them and will always be a larger, heavier, more cumbersome sack for them to drag around than for any of you.

Nonetheless, those SEMH needs irrevocably affect all of your lives to one degree or another. This is the bit that people doubtless find hard to talk about because they fear the judgement of those who haven’t walked such a path. They fear them suggesting that the facts in the above paragraph can’t be true if you’re saying what you’re saying, or are directly disproven by your honesty. That if you say that living with a child with SEMH needs is hard work, you are making it about you, when it clearly should be about them. That if you say you are, at times, embarrassed by their behaviour, you are evidently a disloyal parent.

Why? Why isn’t ok to be honest about these things if they are true? Clearly nobody wants to disparage their child and writing or saying disrespectful things about them is never ok. But what about the need for better understanding of such children and such families? How can we expect the public or teachers or other parents to be more understanding if we don’t try to explain to them what this weird underworld we inhabit is like?

Recently, I’ve felt a few things that I suspect many parents of children with SEMH needs feel, but aren’t comfortable being honest about. I’ve felt as though I were being forced deeper into the underworld by these issues; even keener to hide. But my child with SEMH needs is just as entitled to his life experience as anyone else. I am just as entitled to my parenting experience as anyone else. BB is just as entitled to his own particular feelings about being a sibling as any other sibling. Our experience is different. It sets us apart. It complicates things. But it shouldn’t make us lesser. We shouldn’t have to cower in the underworld.

So, you know me, here comes some honesty.

One thing that people don’t talk about is that having a child with SEMH needs make you all individually and collectively more visible. If you’re all together, the noise and behaviour itself tend to draw attention. Everyone always knows you are there. You never melt into the background or pass through an event or situation unnoticed. You are certainly noticed and not necessarily in a good way.

It can be hard not to imagine that everyone in the vicinity is looking at you, observing you, scrutinising how you handle the behaviour. It is easy to feel judged. I know that all parenting involves an element of this but SEMH parenting is by definition more visible. SEMH parenting means that it’s your child drawing more attention than everyone else’s. It is your child breaking the rule, having the tantrum, shouting, throwing something.

It is quite a skill to remain calm in such circumstances and to actively filter out those around you. It takes balls to think that you do not care for their judgement, stares, tutting; that you care only for your child and their needs and you will proceed with supporting them in the way you know works best, despite that most likely being at odds with the ideas of the multiple eyes observing you. The act of forging forwards as you know best in such circumstances is far harder than it sounds. It can require a strength you don’t have and a don’t-give-a-fig-ness not naturally associated with your personality.

It is hard, while we’re at this honesty game, not to sometimes feel embarrassed. We’re British. It’s in our nature to stay calm, maintain a stiff upper lip, act politely and with reserve. Children with SEMH needs don’t tend to have got this memo. SEMH needs don’t discriminate for different audiences – they are what they are, wherever you are. Your child’s behaviour can all too often be completely at odds with the unspoken set of behaviours expected by all, but also by you, in a particular situation. There are times, frankly, when their behaviour is mortifying and you wish you had an invisibility cloak or teleportation device. It is incredibly difficult to parent in the best possible way for your child in these situations, because that way is probably not immediately compatible with the unwritten rules either and consequently you find yourself hissing ‘stop it or else’ type threats at them in a poorly disguised whisper. This isn’t useful, and you know it, but your face is glowing like you’ve overdone a sun bed and sweat is collecting in cold puddles in your arm pits.

Being in public, with your child with SEMH needs can be exquisitely uncomfortable. (And by saying this, no, it doesn’t mean that I’m not also extremely proud of him every single day.)

But at least in public you have relative anonymity – a fact you can cling to, when things go south. Not so, within school. SEMH needs make your child far more visible than other children. When your child is the one who gets sent to work in other classes, or has their card changed to red again or their face moved onto the sad cloud, or the one who gets suspended, or sent to the Head, or put on a behaviour chart, or taken out of class to work, or has their desk in a corridor, or gets into fights, or heckles the Head in assembly, or tries to escape, or stands in the urinal, or throws something, or hides under the teacher’s desk, or swears in class, everyone knows who they are. Everyone. When this is your child, you can easily guess that households around the vicinity hold teatime discussions about what your child has been up to now. They gain a certain infamy.

I guess everyone handles this differently, but I handle it by trying my best to remain invisible myself. I don’t talk to other parents, I don’t go to parties. I keep away from situations that will further alert me to his infamy. I suppose I do my best to pretend it is happening – what I don’t know can’t hurt me. It helps me to focus on my child, and what he needs and not to care what anyone else thinks, whether indeed they think anything. It’s like I go around with a protective shroud between me and the rest of the parents and as long as I don’t interact with anybody, the shroud does its thing.

Then, a situation or conversation will arise, as one did recently, that will remind me that I am not paranoid, people really are discussing him at their dinner tables. It’s a very weird feeling, knowing this is the case. It’s a mixture of defensiveness (back off, you don’t know him, you don’t understand him), acute discomfort and a realisation that when you walk across the playground being purposefully aloof, that people know exactly who you are and what your child has been up to. It makes you infamous by association. I don’t want to be infamous, or even famous; I want to be invisible, but SEMH needs have eradicated even the possibility of that. It is not a great leap to imagine that we, the parents of the infamous one, are also subject to dinner time debate. Perhaps they thrash out the myriad ways we’ve clearly failed him, for him to be behaving this way.

I think most parents questions themselves frequently and wonder if they’re doing a good enough job. But when your child is swinging from the lampshades and ignoring every request you make, it is far too easy to descend into self-doubt, especially if your patience starts to fray and you find yourself losing your temper. I find it is shockingly easy to make the leap from thinking I know what I’m doing to berating myself for my evident parenting failures, along with the rest of society. It is far easier to imagine we’re parenting well when our children are behaving well. And instead of explaining the transgressions with their actual cause – the SEMH needs – we are more likely, as parents, to think we should have been more therapeutic or calmer or somehow better at this parenting lark.

This is partly why I think we ought to be honest about the realities of SEMH parenting. It’s really bloody hard. It’s hard on a cellular level and many of us expect superhuman levels of self-control and parenting wizardry from ourselves on a daily basis when actually, it’s pretty unobtainable, for the key reason that caring for a child with SEMH needs is a big, difficult, complex task. A task which I think should be better understood and supported by society as a whole.

Perhaps if discussions around dinner tables focussed on what our child’s behaviour might mean about the life challenges they’ve had or what they need their friends to do differently to support them, attitudes might be different. Perhaps if people didn’t approach SEMH presentations with an urge to blame, us parents may not feel so isolated. Perhaps if onlookers were telepathising supportive vibes instead of judgement, we might not be so stressed in public places. I think it’s fair enough that the general public don’t really understand what it’s like or why our children behave as they do, because there aren’t many means of becoming informed, unless they have personal experience of SEMH issues. So, to some extent, it is incumbent upon those of us living it to share those experiences and help people to become better informed. Hence, you know, this blog.

 

I also want to talk about the fact that it is not just parents of children with SEMH needs who feel scrutinised, but siblings too. If you happen to attend the same school as your brother or sister who has gained infamy through their SEMH based behaviours; you are also infamous by association. No doubt you get kids coming to you in the playground, informing you of what your sibling has done now. Perhaps sometimes they are unkind or judgemental or ill-informed. Perhaps they laugh. Perhaps they find it a sport. Perhaps you witness others handling your sibling and their behaviour in ways you don’t think are fair or appropriate or commensurate with what happened. You don’t want to be associated negatively with their high jinks and rule-breaking – you don’t want people to think you are like that too – but you love them, and you can’t stand to see them mistreated either. You are willing to compromise your own reputation to defend them, if necessary. You love them but they embarrass you and draw unwanted attention to you and sometimes, you wish they didn’t and you like them a little less but you feel guilty for it, because they’re still your sibling and they can’t help it and you know that really. Your feelings towards them can be very complicated and overwhelming.

I think being an SEMH family can be a lot for siblings. It requires an emotional maturity beyond their years. Those skills we struggle with as adults – of trying to be Teflon-coated to repel the judgement of others – are challenging and often unachievable for us, despite years of practise. Siblings of children with SEMH needs have to employ those same skills in childhood. It’s an ask which I suspect is routinely underestimated.

As parents, this is another element we have to be aware of – are the siblings of our child with SEMH needs ok? Are we appropriately supporting them to wander around with SEMH needs also weighing in their pocket?

 

To conclude, life as an SEMH needs family has all these extra layers to it, over and above supporting the child who has SEMH needs, as though those needs radiate out from the child, creating ripples far beyond them. There is a visibility to it which has us trying to hide in the shadows. It can lead to uncomfortable and unwanted feelings such as embarrassment, misplaced anger, guilt. It can be isolating and vulnerable. It makes you grow a thicker skin, bundle yourself in a protective shroud, but beneath that, you can’t help but be wounded by the judgement, blame and insensitivity of others.

 

I don’t want to end on a negative, because being an SEMH needs family is not all doom and gloom. I want all the above to be better understood, but I also want people to know that our family is pretty cool. Yes, we’re different, we’re loud, we struggle with rules, we can be a little shocking to behold but we have a lot of fun. We all work incredibly hard to overcome the challenges we’ve been dealt. We are grafters, survivors, persevere-ers, overcome-ers. We are out and about doing things despite the SEMH needs. Wouldn’t it be amazing if that were cause for celebration? If we could all focus on what our son can do and all the brilliant things he achieves, instead of feeling we have to apologise for his challenges.

 

 

 

 

 

 

Parental Mental Health

Thursday 10^th October is World Mental Health Day – a chance for everyone to focus on mental wellness, ways to support mental health difficulties and suicide prevention. I wanted to contribute by writing about a niche, slightly neglected corner of mental health: how do you keep yourself well when you are caring for someone else with mental health struggles? Specifically, how do you keep yourself well when your child has social, emotional or mental health needs?

As a parent myself, of a child with SEMH needs, I am all too aware of the toll it can take. No doubt people will accuse me of selfishly focussing on myself and my own needs when it is my child who is in real turmoil, but to them, I say this: when you are parenting a child with such needs, there is barely a waking minute that passes without you puzzling over how they’re feeling, why they’re feeling like that, what you can do to make things easier for them. You can tie yourself in knots wondering how certain situations might affect them and what measures you can put in place to reduce their anxiety or make things easier. You rake over previous situations wondering what you could have done differently, what else they might have needed, what underlying worries or upsets might have been driving certain behaviours. You write social stories, make visual supports, meet with teachers, buy sensory equipment. You read books, blogs, articles to inform yourself; to check you haven’t missed anything. You consider them and their needs in every plan you make.

I’m not saying any praise or accolade is required for that – it isn’t, it’s just you doing your parenting best like everybody else – but it is all consuming and somewhat exhausting.

The very nature of SEMH difficulties means that children who experience them will now and again (or often) present with behaviour that is difficult for people around them. Again, that might sound selfish, but I just mean it factually. It’s the nature of the SEMH beast. And no matter how good you are at looking beyond it, analysing it, understanding it, trying to support it, the fact of the matter is that some of the behaviour you live with is difficult.

In trying to support my child in the best way for him, I sometimes have to dig so deep into my emotional reserve that I know I’ve gone beyond what is actually there. Sometimes the effort required not to rise to provocation, not to shout, not to fully (or even partially) lose my shit, not to enter my own fight/flight state and to instead respond therapeutically and calmly, feels like a superhuman request. I am not superhuman. But sometimes I feel I’ve plumbed superhuman depths and that can’t be good for you. I often feel depleted after particularly tricky situations and that is probably because I am. I’ve used everything I’ve got and more.

This is where concerning ourselves with parental mental health is absolutely not selfish and should be a priority for all. If I am depleted, how can I provide all the things my child needs? How can I analyse and look beyond and generate solutions? I can barely get off the sofa.

This is why caring for carers is absolutely something that should be talked about.

For me, there are three main safeguards: self-care, self-kindness and external support. I have written about self-care before ( Self-Care ) and I generally consider it to be all the boring stuff that you should do to look after yourself and stay well. That is just my personal interpretation – some people include all the self-kindness stuff in there too but in my mind there is a distinction. For me, self-care is things like eating properly (which isn’t fun because I don’t eat sugar or bad carbs like bread but I know that I stay healthier this way), getting enough sleep (despite being a natural night-owl), getting enough fresh air and exercise. I don’t necessarily enjoy self-care but it is all about things I’ve learned from experience that I need to do or not do in order to function the best I can.

Self-kindness  is much more fun. I view it as little treats to yourself that give you a boost and help to fill up your emotional reserves. It can be anything – sometimes the thought of getting into fresh pyjamas and watching Location, Location, Location is enough to help me through a day; at other times it’s some uninterrupted writing time, or being alone for a bit, or chatting to a friend, or now and again, I do need an actual treat.

Though self-kindness is more enjoyable and has the potential to vastly improve your mood quickly, I continue to struggle with allowing myself to have it. I can’t be the only one. We do seem to live in particularly trying times – with the threat of Brexit, political instability and, even more horrifyingly, climate change hanging over us. There is a general atmosphere of unrest and unpleasantness (just dip your toe into social media to see what I mean) and no doubt all these things are contributing to a country-wide dip in mental wellness. I can’t be the only one who thinks about using some retail therapy for self-kindness reasons then gets the guilt that I might be unwittingly ruining the planet. One purchase can lead to a spiralling concern about use of water to farm cotton, tonnes of clothes entering landfill and a general worry about human over-consumption. Whilst I clearly should be concerned about my carbon footprint (and I am), I am finding that my ways of practising self-kindness are dwindling in parallel.

I don’t drink, I don’t eat sugar, now I can’t really shop. But I’m still plumbing those emotional reserves and that need for a boost continues to gape. I suspect it is about turning away from having to have things and finding more wholesome ways of filling reserves. Writing is a salve, as is cutting myself enough slack to actually relax without constantly clambering around my to-do list. I’ve realised that buying books is pretty wholesome – even a hardback is a fraction of the price of a new top and unless we buy them, authors can’t make a living – so it’s a multi-faceted win (assuming it’s made from sustainably sourced paper. See? I have self-kindness with a side-scoop of guilt problems). Enid, our puppy, arrives soon and I’m hoping that her furry little face will be a salve in itself.

There are no clear answers, and what each individual needs will be different, but my point is that self-kindness is essential. We must let ourselves have it and find the things that work.

Lastly, parents of children with SEMH needs will require outside support in one form or another. It is too big and too hard to deal with single-handedly. Whenever Grizzly and I have one of our frank chats about how we’re feeling, it is never long before one of us wonders aloud how on earth single parents do it. If I couldn’t air my deepest darkest thoughts without needing to censor them or without fear of judgement, I suspect I would implode. Everybody needs that outlet.

We are lucky that outside of our family of four, we have a wider family of grandparents and aunties/uncles and close friends who get it. They are an informed bunch who listen and are willing to help with the analysing of behaviour and application of strategies as needed. They are happy to give us a break. I’m not sure we take that option enough, because life is a little manic and it requires forward-thinking, but it helps to know the option is there. We are also fortunate enough to have the support of school. I had a meeting with them recently and realised that despite the myriad ups and downs we’ve had with them (and the odd specific person I find it hard to engage with) they are genuinely caring and they do want us all to be ok. I feel comfortable speaking honestly with them too and just that ability to voice your worries and challenges outside of your four walls is invaluable.

Unfortunately, not all parents of children with SEMH needs have this emotional scaffold around them and I can only imagine how lonely a place that is. It must be particularly hard for those who don’t know others in similar positions – there is a very real risk they would consider themselves the only ones in their particular predicament, further compounding worries and stresses over whether they or their parenting may be to blame.

I hope that by being open about the challenges of SEMH parenting it will reassure other parents they are certainly not alone as well as raising awareness for any wider family members or professionals working with such families. For me, the key thing is to ask parents if they’re ok and to give them the time to talk if they are not. Be prepared for tears. Most of the time, it is just an outlet that’s needed, not necessarily a raft of solutions, because those parents are likely to have already tried most things you can think of.

Families of children with SEMH difficulties will have found themselves in all manner of weird and not-so-wonderful situations – please don’t judge them. It is safe arenas in which they can be honest that they so desperately need.

Parents can be made to feel guilty for talking openly about their worries and challenges – as though they are in some way disloyal to their child in doing so – however the real risk of encouraging them to put up and shut-up is that it might well push them to breaking point; a point at which they are no longer able to adequately meet their child’s needs.

As a parent, it is scary to admit that things are hard and that scenarios are arising where you don’t know what to do. Parents already fear they are failing, they do not need their suspicions to be compounded by bad listeners, naysayers and judgmental attitudes. Unless you have over-plumbed your emotional depths caring for someone, you cannot begin to imagine what it’s like.

Actually, I think there is a fourth thing that is needed, as well as self-care, self-kindness and support: niceness. It seems like an outmoded concept these days – it’s faded into obscurity along with other seemingly bland concepts such as beige clothing and magnolia paint. But I really miss it. I think we’re all unknowingly really missing it. Politicians could do with re-inventing it for sure. Since when did it become normal to shout and yell and name-call and judge and troll and alienate and oppose and incite? Just be nice. That would improve everyone’s mental health. Some kind words, a smile, a hug or an “I hear you” can go a long way to improving a day.

Let’s look after one another; we’re all just trying our best.

 

Reflections on Adoption 4 Years In

Every year since LB came home, I have written a reflective blog post to mark the anniversary of his arrival in our lives:

Reflections on Adoption One Year In

Reflections on Adoption 2 Years In

Reflections on Adoption Three Years In

It’s time for this year’s so I have just looked back at the previous three. In year 1, I reckon I played down the true horror of our experience. I probably wasn’t that comfortable sharing on social media yet and still very conscious of what others might have thought.

In year 2, I was analytical. It’s clear I had already come on quite a journey in terms of my knowledge of attachment, trauma, ACE’s etc., how it all fitted together and what it meant for LB. I was well into my constant quest to fathom his behaviour.

I don’t know what happened to me in year 3. I’ve just read it back and sneered to myself – and not in a good way. It’s lovely that I was so positive and all glowing about how ‘normal’ our life was but had I lost touch with reality?

I do think year 3 was a good year for us. I do remember struggling for blog-fodder because everything was ticking along and being quite unremarkable. Ha. What a fool. I should never have tempted fate with my glib positivity because in contrast, year 4 has been significantly more difficult. Last year, I seemed to have lulled myself into a weird false sense of security that we were following an upward trajectory and the only way to go was further up.

That was not the case. It’s not that things have been awful – they haven’t – but they’ve been hard enough that I know without a shadow of a doubt that our ‘normal’ is not normal.

I suppose in our third year as a family, LB was settled in his second year with his very favourite, gentle-natured teacher. Once he had formed bonds with his TA, there were no significant upheavals for him. Our fourth year has seen him have a difficult transition into year 2 and we’ve had the most trying time yet attempting to get his teacher on-board. Though we did eventually achieve significant progress and breakthroughs, it felt as though the entirety of the academic year was punctuated by mini-crises, every few weeks or so. This was exhausting, stressful and highly frustrating. I think I came the nearest I have come to having some type of school-based meltdown.

It follows that a tricky school year would equate to a tricky behaviour year and boy, have we known about that. I think the most concerning thing is that behaviours we hoped were long gone, such as Childhood Challenging, Violent & Aggressive Behaviour (CCVAB)  have returned. I don’t know if I would say they are worse than before but the experience now that LB is 7, instead of 3 or 4, certainly feels different. Thankfully he still can’t really hurt me but where I used to dither over whether his lashing out really could be classed as CCVAB when he was smaller, I know it would be now. He’s bigger, he tries to be intimidating and we have to work hard to de-escalate situations at times. Thankfully, CCVAB is not our everyday experience but it has become more frequent of late, making us feel as though we are regressing and as though we are re-living that challenging first year when we should be forging forwards with confidence into our fifth.

We are finding this an emotionally challenging parenting situation – one that is almost impossible to navigate without anxiety taking hold. How is it possible to be back here? If we are back here and we stay here, what on earth does the future hold?

Over recent weeks and months we have worked harder than perhaps ever to maintain equilibrium in our little family. Grizzly and I have had many despairing chats. We know our world has got smaller – we have said ‘no’ to more things because we know LB won’t cope, or, sometimes, that there is a high likelihood that LB will kick off which will make a situation a nightmare and we won’t cope. We are acutely aware that there are times when four people are ruled by one person and he’s the smallest.

I think one of our strengths as a couple has always been our ability to keep on keeping on – to brush off incidents quickly, to move on, to not let them mar our days or hang over into our tomorrows. Grizzly, in particular, has never stopped doing things because of fearing what LB might do – he’d pretty much do anything with him and if an incident occurred he’d deal with it. I’m naturally less like that but once that first year was over, I have never gone to bed worried about the next day. I might pick and choose activities carefully but I’d never overly concern myself with what LB might do somewhere or how I might cope with it. I suppose we have, in the main part, been pretty confident in our ability to parent him.

That sort of sounds like a happy accident but I think it has been a lot more actively cultivated than that – it has been born out of us being well-read and researched, having a clear priority list (think NVR baskets though we had actually not heard of them when we started doing it) and purposefully using a highly joined up approach. We have actively refused to fear the more challenging aspects of LB’s behaviour from the outset and always made sure we’ve had plenty of tools in our parenting toolbox. We have had a clear vision of how to handle things so it has almost been like we’ve had a set of pre-planned instructions we could just follow in any given scenario.

I have to be honest and say that confidence has taken a knock in both of us of late. I think it’s because of the aggression and LB’s increased size and his increased ability to cook up a major scene. I think it’s because we have found ourselves in parenting situations that have been, frankly, pretty scary and in which we’ve had no Scooby of what to do. I mean what exactly are you supposed to do when your 7 year old spits on you in public or threatens to punch you if don’t do x or y and then does punch you when you stand firm? Even when you read a book about Non-Violent Resistance you don’t really get an answer.

This last year has seen us have to re-think our strategies and employ different approaches. I think when children are smaller, it is an accepted part of parenting that occasionally your child might have a meltdown or refuse to leave somewhere and you can simply bundle them up like a sack of spuds and transport them out of there. Although we still see that type of behaviour, that response is no longer appropriate now that LB is large and extra-specially fighty. Verbal ways of managing such situations are tricky when your child is hyper-aroused and anything that comes out of your mouth will be seen by them as provocation. We have had to further hone our skills of staying calm, literally in the face of flailing fist and attempts to damage things. I very rarely raise my voice because there is now a clear correlation between that and escalation. Where once we would have stayed with LB no matter what he was doing (for the relationship and so as to show the behaviour no fear), we now sometimes find ourselves in situations where he appears purposefully provocative and ignoring or walking away are far more effective (and safer) strategies. One day, he seemed intent on damaging the house but when he realised no one was even there to see, he got bored and switched on the TV. Had we have followed him around, trying to coach him out of it, or even worse, used a traditional telling-off method, I know someone would have been hit or kicked. It was far wiser to make ourselves scarce.

I’m finding that a chameleon-like parenting ability is required so we can alter our approaches to match the ever-changing circumstances we find ourselves in. I have also reflected a lot on this, as I’m sure you have come to expect, and a controversial part of me is whispering that since we’ve upped our therapeutic approach to parenting, LB has potentially started to view us as weaker and easier to dominate. I’m a huge believer in the power of relationships and I’m sure that is the way to lasting change but I need him to get the message that threatening people is not the way to get what you want. And that violence is never ok. Though we will of course be persevering with all things therapeutic, I am increasingly of the point of view that LB also needs logical consequences to really underline serious messages.

Anyway, since we’ve agreed on this plan, I feel stronger in my interactions with LB. This sort of parenting certainly requires a plan, in a way which ordinary parenting doesn’t. Once you have a plan, you are much less likely to find yourself off balance, flailing for a solution in a challenging situation. You still find yourself in that situation but you have half a clue how to handle it.

This sort of out of the ordinary parenting (I prefer this term to ‘extraordinary’ because that sounds like we’re fabulous at this and as you can see, we’re just feeling our way through the swamp) requires an incredible amount of strength – to get up again; to do it again; to go there again; to get in the line of fire again; to do it cheerfully; to not let that incident haunt the next minute, next hour, next day; to not be quaked by it; to love unconditionally. Unconditionally: despite it all; including it all.

Sometimes I don’t know how we’ve got this far. Sometimes it’s easy. Sometimes it really isn’t.

I suspect this is another trough in the typical peak and trough pattern of life with a trauma-experienced child. I talked last year about higher peaks and shallower troughs. Year 4 has involved many more oscillations and a more frequent swinging from peak to trough. Some troughs have been pretty deep but we haven’t languished in them for long. The weeks, and even months of relative calm I talked about last year have all but vanished. I don’t think we’ve managed more than a calm (ish) week or two before something has happened. And it has been harder than ever to pinpoint triggers. There have been some obvious things like a school residential, specific incidents in school, moments of poorly thought-through parenting etc. but at other times it has felt like a general malaise. LB certainly continues to struggle with his Interoception skills and feeling under the weather is generally expressed through increased fightiness only – he still doesn’t know he’s ill and we often don’t until several days later when someone else catches it. He has grown a lot too – I don’t know whether that could impact.

There is always a trigger. I know that. It is tricky when you are a person who over-thinks a lot yet you still can’t figure out what it is. I feel quite sure that LB rarely knows what’s behind his own behaviour at the moment – not in a way he can express in words anyway.

In the process of writing this, I’ve thought and re-thought and scrolled back through my Twitter feed looking for clues. I think I can trace the latest regression back to the blasted school residential. It wasn’t even two months ago yet LB has had three different bugs since then and just hasn’t been himself. As I say, at times it has been like stepping back three years. I wonder whether it has essentially re-traumatised him, re-awakening all those feelings he felt when he was uprooted and brought here. I think he had a taste of the wild abandon he used to experience in foster care (due to being in a large dormitory full of boys without constant supervision) and that has re-awoken his need to be in charge of his own survival. Certainly we have been able to soothe him by staying around the house, with a high level of nurture – the kind of thing we would have done when he first arrived – but as soon as we try to spread our wings a little, we are rapidly back to a tricky place. My conclusion, now I have some possible insight, is that he needs more of his world being kept small and the close nurture and the bonding. I don’t think there’s going to be much excitement for the remainder of the holidays. I hope it’s going to be enough because LB in school, trying to learn, when he’s in this survival state isn’t going to be pretty.

*

I’m sorry that I have been more negative than usual this year. I have always been mindful of frightening people but the further into this we get the more important it feels to tell the truth. In some ways it has got harder to do that – this year has also seen a rise in people questioning the very concept of modern adoption. There are many who see deep flaws in the current system – who view the permanent separation of children from their birth families as morally corrupt; who see all adopters as wrong-doers. There is a very strange juxtaposition between having an awareness of that and living this. I suspect a hard year has felt harder within a hostile climate.

All of that said there have of course been positives. Yesterday was lovely and it has never been more important to stop and acknowledge and enjoy these moments.

I am hopeful of a better school year. I was wondering aloud the other day whether the next teacher would heed any of the plans we made in our transition meetings when lo and behold we arrived home yesterday to a package she had hand-dropped off with a post card for both boys and a book for LB and an offer to meet in the holidays if it would help him. I’m so grateful and feel she understands things on an instinctive level Mr. Previous Teacher, though he was lovely in the end, just didn’t have.

Despite our wobbles, we remain positive and resolute. I remain optimistic. Here’s to some of that mystical normality I once knew making a re-appearance in year 5.

Mislaying The Positives

I think everyone knows that the last few weeks have been a little trying. Between school residentials and transition, there has been plenty to get my knickers in a twist about (if you somehow missed it, see Hysterical , The Big Trip and Is Dysregulation Rocket Science? ). This isn’t unusual, I’m frequently banging on about some issue or other, more often than not relating to LB’s education. I’m aware though, that in getting caught up dealing with the myriad issues, it can be all too easy to skip over the positives. It means that things, that when you stop to think about them are actually amazing, can pass you by with barely an acknowledgement. I don’t want to skip over these things – these achievements of LB’s – because they are massive within the context of his history and should be given the credence they deserve. I’m going to share one thing, in particular, today. First, I need to tell you some facts.

I don’t like bragging. That’s a fact. I can’t bear it when people go to parents evening then write #giftedandtalented on Twitter or Facebook. Or when someone asks you if you’re concerned about your child and you say yes, and then they say how they aren’t at all worried about theirs because they are exceeding expectations in every area. I don’t like it when people brag about how expensive their house is or how much they earn or how clever they are or any of the others ways that people try to seem better than other people. Just, no.

Here’s another fact. When LB started pre-school, his development was measured to be two years behind the typical expectations for his age – so he was functioning round about the level of a two year old, when he was four. That’s a very tricky educational starting point. There were many barriers between LB and formal learning – behavioural, emotional, linguistic.

When LB started reception class, he couldn’t count. I’m not exaggerating – he literally couldn’t count to three in the correct order. This was not through a lack of trying on anyone’s part – it was mainly due to his Developmental Language Disorder (DLD See Developmental Language Disorder or DLD & Education ), as well as his tricky start. It did mean that numeracy was going to be extremely difficult. It is impossible to do sums if you don’t understand the currency you’re dealing with. It literally must have been like adding apples and pears for him.

By the end of year 1, though LB had made incredible progress in all areas, he had never quite managed to hit an expected level in any subject. It didn’t matter. We were extremely proud of him because of all the things he had achieved and really, from a starting point of 2 years behind, how could he?

Year 2 felt like a big jump. Year 2 had SATS. SATS were going to be hard for someone working below the expectations of the curriculum; someone who had only been able to count for 18 months or so. Fact. We didn’t even know if we’d let him sit the SATS – if they were going to feel too big an obstacle.

Somehow, despite all those facts, at the end of Year 2, LB managed not only to sit his SATS but to pass his Maths SATS. Not only that, but he smashed it, gaining close to a ‘greater depth’ score. He has also been deemed to be working at the overall expectations of the curriculum in numeracy, so in his report, he got his first green light. In fact, he got one for science too.

Why are you telling us this, if you don’t like bragging? I hear you whisper.

I’ll tell you why.

The ACE’s index (Adverse Childhood Experiences index) came about as a way of measuring the impact in later life of various different adversities that could befall a child. This is important because it is only fairly recently that society has begun to acknowledge that things that happen during childhood can continue to impact a person throughout their life. It is important we understand that childhood abuse, neglect or the disappearance of a parent through divorce, death, imprisonment or moving into the Care system doesn’t stop impacting a person once the event is over. It is really important these things are widely understood. The old adage that ‘the child is safe now so the past can be forgotten’ really does need eradicating and something like the ACE’s movement helps with this.

The ACE index also tells us that the more ACEs a person has experienced, the greater their risk of mental and physical health difficulties, substance abuse and unemployment. In short, the worse your start in life, the higher the likelihood of your life outcomes also being poor. A double-whammy body-blow.

 

It is beginning to be recognised that though this information is well-intentioned and to some extent needed, by encouraging people to count numbers of ACEs, you are really misunderstanding the way trauma works. It’s feasible that a person could score just 1 on the index, for an event that may only have occurred once, on one specific day. The index would suggest that this event would only have a minor impact on the person. However, from what we know of trauma, this is isn’t accurate. Depending on the person and their own reactions, that single event could have anything from a minimal to a profound lifelong impact upon the person. Similarly, because you have a large number of ACE’s, it doesn’t necessarily mean you will end up homeless, addicted to alcohol and drugs and suffering several health complaints, and I think there is a danger in suggesting you would.

 

For a young person, growing up with the knowledge they have a high ACE score could well make them feel hopeless about their future, and is that really what we want for our most vulnerable children? Surely the message should be that, yes, rubbish things that happen in childhood can impact upon a person and as a society we acknowledge it. We should also be offering all the extras a child could need – therapy, education, social/behavioural/emotional support – to help them in overcoming the impacts of those ACES. We should be acknowledging that children with any ACE score need more from us – more care, more love, more support. We should be flagging them up as at risk of the future harm the ACE index suggests whilst providing them with what they need to negate that risk.

I think there’s a danger in suggesting that something that happens early on will categorically lead to x or y later. These things are not set in stone. With the correct support, children who’ve had adverse starts in life can and do overcome the barriers their early lives attempted to block them with. I’m not saying it’s easy – it will undoubtedly be harder for them than for children without ACEs – but shouldn’t we try? Shouldn’t we aspire for the best we can for all children?

So, when a child comes from two years behind expectations, having experienced neglect and the severing of links with their biological family, and several moves, and despite all that catches up with expectations for children who have dealt with none of that, shouldn’t we be shouting from the roof tops? I think so.

Often, it is the most privileged who brag the most. It is hard to be impressed by the gains of those who already had a head start, but when the one who was lagging behind, who joined the race a long while after the others and kept on running despite being so far back, manages to catch up, that’s truly brag-worthy.

This is not all about catching-up though. Even if LB hadn’t have caught up, but had kept running, that would be a significant achievement too. He’s still running when it comes to literacy and he may always be, as may many of his other adoptee peers who have educational mountains to overcome, and I think it’s important we acknowledge that every next reading level, every percentile, every point on every scale, is harder won for our children with ACEs. But they’re doing it. They’re out there, surpassing expectations all the time. And I don’t want that to be lost in schools that don’t understand their behaviour or in parents having to fight or getting dragged down by the multitudinous battles they’re facing. We mustn’t mislay the positives. These positives are huge and indicative of something bigger even than ACEs. They’re about human fortitude and our ability to overcome. And a beacon of hope for what can be achieved, when we properly support our most vulnerable.

 

 

 

 

 

The Big Trip

Last week I was getting all irate because I couldn’t get LB’s TA to understand the magnitude of LB going on a residential – see Hysterical . I was also worried about how LB himself would cope, following moments of distress and him struggling to sleep.

After that, things improved a bit, seemingly because they’d spoken more about the details of the trip in school, resulting in LB realising they weren’t in fact camping out in tents. The idea that they were must have been worrying him because he did settle when he realised they weren’t. I have no idea where he got that idea from in the first place – it just goes to show that not all worries are predictable.

I didn’t press any issues with school because things seemed to be ok.

The night before the trip, LB grew anxious again. He really struggled to get to sleep and got himself in quite a state. He was worried about “missing us too much”. The next morning, we woke to him to him crying and shouting the house down. It was such a shame to hear because it isn’t like him to get so distressed.

LB came into bed for a cuddle and soon rallied. He started doing my make up while I was still half-asleep and, despite, or perhaps due to me looking a state, it cheered him up considerably.

When BB got up, he did a fabulous job of encouraging LB – telling him that he was nervous when he went on the trip too but that all his friends would be there and it’d be ok. He is so instinctive that boy, it really does make my parenting job easier.

It was almost as though once LB got his head straight that he wanted to go and that it would be fun, even if he was nervous, he just focussed himself on getting ready. Soon we were at school, amongst a throng of similarly excited children and LB was fine. He didn’t struggle to separate at all (as I thought he might have) and went right on in.

I had a quick word with the TA and impressed upon her the importance of calling me, should he need her to. I could see her reluctance, but ensured I got my point across.

 

It was a very strange evening at home, that night. It was so quiet. And so tidy. And something was palpably missing.

Our thoughts were not far from LB all evening. I checked my watch every ten minutes, trying to think what he’d be doing at each point. I was surprised by how much BB worried about him – he too wondered aloud about him much more frequently than he would if he had been staying with grandparents, for example. We all knew this was a huge deal and could have gone any which way.

From about 8pm onwards, I kept thinking my phone would ring any second. But it didn’t.

I kept checking the school Facebook feed but it hadn’t been updated since 4pm so that revealed nothing.

By about 10pm, I figured it was safe to take my shoes off and have a cup of tea, whilst simultaneously wondering if they would call the second I sat down.

But they didn’t. It seemed unlikely they’d call during the night so I assumed this was us: he was really doing it. It would have been really appreciated had someone taken a couple of seconds to send me a message saying he was fine, but that didn’t materialise either. I half thought, due to them having me down as mildly hysterical and neurotic, that they would have sensed the need for such a message. But there we go.

 

By school pick up time yesterday, I was very keen to get him back again. I had half envisaged him running out of the classroom door to be swung into a swirling hug, but, this being LB, our reunion was a lot more nonchalant. I had forgotten that we’d probably get a bit of the cold shoulder because we had been separated for twenty-four hours. That’s always the way of it. But, in the grand scheme of things, it was ok. He didn’t hate us, he was just a bit quiet and standoffish.

He was also, what Gary would technically describe as, “dead dog tired.”

It happened to be parents evening, so between the information LB shared, the chats I had with his teachers and accusations made by random children in his class, I managed to piece together an accurate-enough account of what actually went down. I think he enjoyed it overall. Apparently at teatime on the first day, LB began to droop and asked to go to bed. He does go to bed early and his body is very much ruled by a strong circadian rhythm, and affected by not sticking to it. The staff jollied him along because they hadn’t done the bonfire and marshmallows yet. LB managed to power through but then, obviously, went beyond tired and by the sounds of it, struggled to get to sleep. I suspect there was a degree of high jinks. However, I’d rather that than him be upset and crying for us. And, according to his TA, “all the boys were a nightmare for bed.” And, well, I did warn them.

I suspect the second day was trickier – LB was tired and no doubt struggling with regulation. But, he came back in one piece and so did all the staff.

I think this is a probably a time where I don’t need to worry about the details too much – instead focussing on the bigger picture. That picture is that LB, at seven years old, with a history of neglect and trauma, has managed his first residential, without any significant ill-effects. What a guy.

I thought he’d have been fast asleep early last night, but no. I suspect if there are any lasting effects, it will be tricky bedtimes for a few days, while he re-adjusts and maybe a dysregulated weekend – no big deal.

I hope that him going away and us still being here when he came back is powerful for him. We all told him how much we missed him and how weird the house was without him. We told him how proud we are of him for managing it. I hope it’s another step forward with his attachments, and with his self-confidence too.

LB might be the smallest member of our household but my goodness he’s a big presence. Even when he’s asleep, the house feels fuller and more complete when he’s in it. I think the trip gave us all a strange vision of what life would be like without him. It would undoubtedly be tidier – the tornado of discarded clothes and toys notably missing; quieter and calmer. But, jeez, it’d be boring. Who wants sedate when you could have exuberant, unpredictable and hilarious? I know which I’d choose, and there’s no contest.

 

Addition – Saturday

As you can tell from the above, I thought we’d survived and were kind of okay.  I didn’t anticipate that I would be called into school on Friday evening, faced with teachers who were surprised at LB’s lack of ability to control himself and have a smiley face chart waved under my nose as a supposed cure-all.

I actually despair.

Surely it is not that difficult to attribute dysregulated behaviour the day after a trip, to the trip? Surely, it should have been obvious to all that Friday would be a very tricky school day? Surely, or so we naively imagined, the demands and expectations would be reduced accordingly, to accommodate LB’s temporarily reduced window of tolerance? Surely?

Err, it would seem not.

Instead there was outrage that LB wouldn’t do what was asked of him and that he was rude to some teachers. We just cannot accept this behaviour, there have to be consequences.

Groan.

Then, without consulting any of the members of staff who know him best, and without reading any of LB’s paperwork, two members of the senior leadership team thought they knew how to sort him out. A smiley face chart. Seriously. I think they actually thought I’d be pleased with this new fangled invention.

I’m just so frustrated that every time we think we’re there; that school understand LB’s needs and how to support him, something like this happens to suggest the polar opposite.

Grizzly and I now feel we shouldn’t have let him go on the trip. School clearly aren’t able to accommodate and support his needs properly when dysregulated. They can’t even recognise that he is dysregulated. Essentially, they can’t keep him safe. And if that’s the case, they can’t take him on any trips. Its so frustrating because I told them and I told them, but they thought I was exaggerating. Then when the behaviour we predicted does occur, they think its nothing to do with the trip, it’s him getting spontaneously extra naughty. Not my words – how I imagine they think of it.

I could scream.

And while I’m ranting, getting dragged into school means my children are left in the playground, to their own devices, which is clearly unwise for LB. I’m discussing his behaviour while he’s given further opportunity to misbehave.

It is exhausting being a parent of a child with behaviour needs – not because of their needs – but because schools just cannot wrap their heads around them, despite training and meetings and about a gazillion discussions. The patience of a saint is required and mine is running out.

 

 

 

Hysterical

One of the biggest problems, I find, with attempting to get other people to understand the emotional and behavioural needs of your child with SEMH issues is getting your points across without those people drawing the conclusion you are hysterical. I’m pretty sure I’m not being paranoid about this – I have read it frequently in people’s body language, facial expression and even in their choice of words. Here she goes again, being all over-anxious and fretting unnecessarily, they think. When I say people, I mainly mean teachers, though this isn’t exclusive to them.

When you do have a child with SEMH issues, you become adept at predicting their triggers. You know the sorts of situations that may challenge them and, in an attempt to parent them the best you can, you try to anticipate potential problems in advance so that tweaks or alternatives or supportive measures can be implemented to minimise their stress. For me, that just makes good sense. Why leave a child to flail and panic and worry, when you could prevent that with a bit of forward planning or heightened awareness? Obviously you can’t predict everything, but where you can mitigate potential problems, why wouldn’t you?

It’s this attitude that brings me to teachers, raising possible problems with them in advance of them happening. Unfortunately, what I see as a wise anticipation of issues is more often than not interpreted by them as over-anxious parenting. I’m pretty sure they have conversations about how I’m creating a self-fulfilling prophecy and bringing LB problems where he didn’t have any before. “Her anxiety will be rubbing off on him,” I can imagine them whispering, “It’s not him, it’s her”.

This has come to the fore because next week LB is going on his first residential. I do not feel it is excessive to say this is a big deal for him. Staying away from home without any of your family would be a big deal for most 7 year olds but is even more so when your early life has involved moving from place to place: staying away might trigger all sorts of difficult feelings and anxieties, not least whether you will actually return home again. This is compounded by embarrassment that you wear pull-ups at night when your friends don’t and the trip will involve you staying up way beyond your bedtime; a time that you already struggle to stay regulated for in your own home.

So yes, I think there are some very real concerns about the trip and in an attempt to help LB as much as possible, I have been pro-active in discussing my concerns with his teachers. I wanted them to be aware of his continence issues so they could help him subtly. I wanted them to know his bedtime is early so that when he starts to spiral they will be able to recognise it as dysregulation due to tiredness, not bad behaviour. I wanted them to be aware of the reasons why a trip away from home might trigger feelings from his past. I wanted them to be aware of all this so they could support him through it.

I thought this was all tickety-boo. They had seemed to listen and had been reassuring about how they would deal with it all.

However, as the time draws closer, LB’s behaviour is beginning to spiral. I have noted it at home. They have noted poorer listening, poorer compliance and an increase in fidgety behaviour at school. LB has started saying he doesn’t want to go on the trip. To me, it is obvious he is anxious about it. This anxiety is being expressed through the changes in his behaviour.

School, on the other hand, are scratching their heads about this change of mood. Why is he all of a sudden throwing things and threatening to kill his TA, they wonder. To help them out, I’ve tried to make the link between the two things for them. This has involved me having to elaborate on why exactly the trip might be anxiety-provoking now, before it has even happened. The problem is that I don’t think they’re really getting it, so I find myself harping on more than I’d really like. The more times I even reference the trip, the more convinced they become that I am a hysterical, over-reactive mother.

This morning, as a small part of the coherent explanation I was trying to weave on the spot, I mentioned that LB has only ever stayed with us or his grandparents (I thought the ‘since he’s been here’ part was obvious) so staying somewhere else might be quite triggering. “He won’t be alone in that,” his TA says, “many of the children won’t have slept anywhere else”, as if I am being quite unreasonable by making a point out of something common to all the children. What I want to say is something along the lines of, “Yeah, but, before these other children moved to their forever home, did they live with foster carers who randomly took them to other houses for respite, with people who were not always registered as carers? Did they get left there without explanation for inordinate periods of time? When they came to their forever home, were they just dropped off by people they had lived with for several years who would then just disappear never to be seen again? Before that, were they suddenly removed one unpredictable day from the family who conceived and gave birth to them? Where they? No? THEN IT REALLY ISN’T THE SAME!”

Obviously I said no such thing, smiled sweetly, took a deep breath, and attempted again to explain things in a calm manner that might actually get my message across. That’s how it was from my point of view anyway. I suspect that from theirs, they thought, “Oh, she’s still going. I’ve covered off that point so she’s trying to concoct more. Definitely hysterical.”

What’s infuriating is that when you don’t feel heard, there aren’t many options. I don’t believe in shouting or being rude (it’s all about the long game and building relationships) so I’m really left with repeating myself or trying to find other words or other arrangements of words to get the ideas to strike home. I often find myself reaching for more extreme or more shocking examples when the tamer ones don’t resonate. It is as though I have to escalate the severity of what I’m saying to get my messages heard. The thing is that if they are still not heard, I am surely seen as increasingly hysterical.

I suggested today that we must monitor LB. Yes, some anxiety is to be expected. But as he is already at threatening to kill people levels, perhaps we don’t want him to escalate much more. Perhaps, if he does seem to be spiralling out of control, we might need to come up with a plan to soothe his nerves. Perhaps, and I was just throwing things out there, we could reassure him that we would not make him stay somewhere he doesn’t want to (trust and all that) and we could offer to pick him up from the day-time part so he can sleep where he feels safe: at home. Though, to me, this makes perfect sense, I can see that school find it an outrageous suggestion – the kind that would only be made by a mother struggling to loosen her apron strings. “She doesn’t even want to let him out of her sight for one night, for goodness sake,” I can imagine them commenting. The response from the TA only confirmed my feeling they had been talking about me in this way – “Mr Teacher doesn’t want you to do that,” she said, when I suggested it.

It really is quite a challenge to remain dignified in these situations. It is a constant balance between persisting in getting messages across and presenting like a non-hysterical, credible source of information. I do a lot of internal swearing.

I understand that they have taken hundreds of children on trips and that every parent gets a bit worried about it and that they will do their best to look after LB and that if he gets upset, they will deal with it. I know they haven’t had to call anyone’s parents before, but, if we’re honest, that’s more of a gauntlet than a reassurance. When they say, “he’ll be fine,” I hear, “we’re not taking this seriously enough”. If only they could acknowledge this is a huge deal for him, we’d be grand.

Obviously we are doing all the prep stuff and giving reassurance at home. LB does seem to be coping better now he’s realised they aren’t camping outside (you really can’t anticipate all the issues) but I am typing this outside of his door as we have another tricky bedtime. I intend to monitor him/ his behaviour over the weekend and should things have worsened, I shall be back at the classroom door, making myself look hysterical again. And I don’t really care what Mr Teacher thinks about it – should LB be crying and hanging from my leg when I drop him off for the trip, I will be picking him up at bedtime.

As tempting as it is to just pack LB off with them, with little instruction, to let them deal with whatever happens themselves, I can’t shrug my shoulders of all responsibility. He’s our son and it’s our job to meet his needs as best we can. If that means occasionally having to overrule school and to lose street cred over being anxious parents then so be it. LB’s needs are paramount and if that makes me hysterical, then I guess I am.

 

 

*The irony of me writing last week about how much I love the school is not lost on me. I should have known that singing their praises would nudge the universe into trying to prove me wrong

**The word ‘hysteria’ derives from the Greek word for ‘uterus’, suggesting that to be a women is to be hysterical; that being overly emotional is an intrinsic failing of having a womb. Marvellous. I wonder whether any of the dads out there experience a similar thing when they have worries or if this shrugging off of concerns is more prevalent when they are raised by mothers?

I’m not really trying to make a feminist point, I’m genuinely wondering.

 

 

 

 

 

 

 

When is a school a good school?

It’s the twenty million dollar question isn’t it? How do you go about picking a school for your child that will do all the things you want it to? Do you go on their Ofsted: outstanding schools only? Or on their league tables? Pick the one with the best SATS scores? Do you go on recommendation? Do you consider staff turnover? Or exclusion figures? Do you avoid the ones with chequered pasts?

Which measures should you look at to get the most accurate indication of an establishment’s ability to educate your child? This is a huge question and I fear this blog is going to mess with heads more than answering it.

The thing is, on paper, the boys’ school might be considered dubious. It is currently rated ‘good’ by Ofsted but before that it ‘required improvement’. There is an on-going question over leadership and all sorts of political shenanigans happening that I really can’t go into. It does fair to middling on league tables. There is quite a bit of muttering in the playground and some parents have decided to talk with their feet in recent months.

However, despite all that, I bloody love it. It isn’t that we’ve always had the easiest time or that relationships were built immediately or that they just ‘got’ LB because none of those things happened. In fact, at times, I’ve been tearing my hair out. If you want to know more about our history with school, you can read these posts: Adoptive Parent: Behaviour Detective 

School Worries

Alleviating School Worries

Dear Teacher

Stop. Collaborate & Listen.

There are several factors that have led me to having the warm, fuzzy feelings I have towards them now. First of all, despite LB’s behaviour being difficult to understand, difficult to cope with in a busy classroom and it requiring novel practices, not one member of teaching staff has ever given up on him. Not at any point. They have never rang me and asked me to bring him home. They have never made us feel that they can’t/ won’t help him or us. His TA, who has to get a special mention because I wasn’t always sure she was the right appointment, has been there for him, day in, day out, for two years now, even though he has hurt her and called her names and refused to do anything she says (at points). She could have handed her notice in and gone to find a much easier job, but she hasn’t. She’s changed her days when LB has needed her to and she has put up with uncertainty over the funding which pays her. She has visited him at home during the holidays and brings him things from her home she thinks he might enjoy in school.

I don’t know how to quantify that sticking power/commitment or which sort of league table or report would validate it.

And the teachers/TA don’t just tolerate LB, they love him and it’s obvious (to him as well, I imagine). At least two members of staff have cried with pride at what he has achieved. Unlike some schools which have strict ‘no touching’ policies, they are all willing to show LB he is loved through cuddles and physical reassurance if he needs them to, including his current rugby-playing male teacher. It’s hard to do that in this day and age but LB needs it, and the teachers know that.

They are very instinctive about his love for animals too and don’t bat an eyelid about him going into assembly with two guinea pigs, or spending some time with the school dog. They do forest school (big tick), plenty of sport and are happy to fly in the face of convention or go above and beyond if necessary. Two members of staff will visit us at home, as part of transition, for example.

I think much of what makes me so happy about the school, comes from the genuinely caring people who work in it. We’ve now worked closely with four different teachers and the TA and every one of them has cared enough about LB and about meeting his needs the best they can, that they’ve been willing to listen and to do things differently. Again, I don’t know how to quantify that willingness but it is essential. Without it, I would still be tearing my hair out. In fact I’d probably be fully bald and rocking a rebelliously coloured wig.

The teachers were not experts in trauma when they met LB. I would say their knowledge has ranged from none to some but, crucially, they have been open to other professionals coming in (post adoption support & a psychologist) and to listening to them. Over time, though I won’t lie about the difficulty in achieving this, they have become willing to listen to us too.

One of the biggest journeys we have been on has been with LB’s current teacher. We have gone from inappropriate comments about ‘attention-seeking’ and ‘manipulating adults’, born out of not knowing any better, to him pro-actively passing on key, attachment sensitive strategies to the next teacher. He has literally turned things around from LB refusing school and being anxious in his classroom, to LB being happy, making accelerated progress and having a warm, trusting relationship with each other. That willingness – to admit there’s a problem, reflect on it, take advice on it and action change – is immeasurable. As a human, it is uncomfortable and can be confidence-shaking to go through that sort of process. Many teachers are not willing to lay themselves bare in that way, instead becoming entrenched in how they’ve always done it.

We all sat in a transition meeting yesterday – him, us, LB’s next teacher, his TA and the acting SENCO (reception & yr 1 teacher) – and it actually felt like a team meeting. Like we were LB’s team and we were all working together to make sure the transition is as smooth as possible for him. It wasn’t combative, there wasn’t disagreement, I didn’t leave despairing or feeling they think I’m neurotic – all of which have happened many times before. It felt like a collection of people, each with their own set of knowledge and skills, and a mutual respect for the others, brought together by their shared commitment to provide the best they can for LB. It has felt a long time coming, but my goodness I’m grateful for it. And not only that, I’m proud of it.

I’m proud of our persistence and unwavering commitment to being friendly even when things have been tough – these relationships would not be so solid otherwise – and without somehow building up a foundation of respect and trust, it is almost impossible to effect change. I’m proud of the teachers for their openness, commitment, willingness and genuine care. I’m proud of LB for teaching a bunch of grown-ups the most they’ve learned in a long time and for persevering when the strategies have not been right for him. I’m proud, that with the support of his exceptional school, LB continues to confound expectations.

I don’t give a fig about the Ofsted report, the league table, the SATS scores or even the political shenanigans (though we could do without them) because none of it really matters. Its people and relationships that make the difference and LB’s ‘team’ rocks.

 

DLD & Education

Today there has been a web chat run by @DLDandMe all about the impact having a language disorder has on a child’s education. It is part of their wider work to raise awareness of Developmental Language Disorder  (DLD) and to spread the word to a broader audience, about what DLD is, how to recognise it etc. I joined in a little, although late, but I thought it might be useful to share more detail about this topic, from our own personal experience.

As most readers already know, I am both a speech and language therapist and Mum to our seven year old son – LB – who has DLD. There is a complication to our story, which is that LB experienced early neglect and didn’t come into our lives until he was three and half. It is pretty impossible to pick apart the different impacts of neglect and DLD, with both having made their mark. However, it was clear from fairly early on that the communication difficulties LB experienced were more significant than delay alone and where progress was quite quick in some areas, speech and language has always proved more challenging for him. As much as possible in this post, I’m going to focus on the specific ways DLD has affected LB’s educational progress, notwithstanding the separate effects trauma has had.

LB’s DLD impacted on all areas of his communication development when we first met him – including his ability to understand language (comprehension), his auditory memory, his ability to use words and make sentences (expressive language), his ability to listen and pay attention, his ability to speak clearly and his social communication. When I talk about his presentation back then, in workshops and the like, I can see that it shocks people. And it was shocking, because LB’s language system just couldn’t do what he needed it to – not one part of the complicated whole functioned as it should have. He was very much trapped inside of himself and he wasn’t left with many options other than to express himself through his behaviour.

In the early stages of his pre-school education, this impacted him in a myriad different ways. He was certainly delayed in learning concept words such as his colours, size words, same/different etc. which meant he just couldn’t follow much of the teaching or express answers to what nursery staff would likely consider easy or every day questions. That said, with specific teaching of one concept at a time and plenty of reinforcement in everyday activities and play, LB was able to close the gap pretty quickly. It isn’t that LB can’t learn, because he has developed phenomenally quickly, it’s just that he couldn’t pick these concepts up from the ether, as children with typical language skills would. He required specific teaching, repetition and showing, to get them to stick.

Obviously, struggling with comprehension made it even harder for LB to learn new things. There must have been much of what went on in Nursery that he couldn’t follow. This no doubt exacerbated his difficulties with listening and attention, because it is extremely hard work for anybody to focus on language they don’t comprehend. Imagine having to listen to French or Urdu or Finnish or any other language you aren’t familiar with, for large swathes of each day. It would be exhausting and it wouldn’t take long until you stopped listening. Therefore, in some ways, LB’s DLD exacerbated his DLD. He certainly coped better on a 1:1 and thankfully we were able to provide him with this because I was on adoption leave and he just went to pre-school for a few sessions (and now he has TA support). Keeping distraction levels down and matching our language to the level LB could cope with, was imperative. It meant we could keep language accessible for him most of the time and choose which concepts or structures we wanted to stretch him with. I guess this is where my professional background came in – I suspect creating these ideal learning conditions would be much more difficult for a child whose parents are new to the idea of DLD and whose pre-school setting don’t get it.

Certainly as LB’s comprehension developed, so too did his ability to learn. I know it sounds a bit ridiculous but he did appear to be growing cleverer. I maintain that had he have had a cognitive assessment at the beginning, and one a couple of years later, he would have climbed the percentiles. This is because learning and education is generally acquired through the currency of language. As he acquired more words, he knew what more things were. He was able to express how things work. He was able to enquire and find more information out. The more language you have, the better you become at gaining it. Initially, we just couldn’t have talked about complex ideas such as electricity or natural disasters or endangered animals or health conditions. LB didn’t have the vocabulary to access a discussion or explanation about such things so he essentially wasn’t able to learn about them. It was only when he had gained sufficient depth and breadth of vocabulary and could listen to and follow longer structures, that he was able to develop his knowledge of the world around him. And when this did happen, it was amazing to witness the world opening up to him.

Vocabulary acquisition was a huge ongoing challenge for LB (and me) for a long time. Initially, even though we used lots and lots of modelling strategies, he didn’t seem to be growing a larger vocabulary. Again, like with other aspects of his language system, the more he heard a word used and the more times he managed to store a new one, the better his language processing system got. He has certainly got quicker at acquiring new words, even if this continues to be hard for him. Evidently LB’s language processing system (the bit of our brains that hears words, de-codes them, decides what sounds are in them, and their meaning, and stores them in an organised way, ready to be spoken) was not well-developed. It was laborious for him to use it, meaning that getting his vocabulary as big as he needed it to be must have been an exhausting task for him.

Where LB would once have needed to hear a word used around him for several months, with a high level of repetition, before being able to store and use it, he can now store a new word almost immediately. This has had a huge impact on his ability to be able to keep up with the curriculum. Each new topic brings a cornucopia of new words, which children are expected to immediately absorb in order to follow teaching. If you can’t understand the new words, it’s extremely difficult to follow the new lessons.

Although speedier, LB’s processing system remains inaccurate – he struggles to de-code words so that, without help, he might store ‘Corvette’ as “courgette” or ‘submarine’ as “subramine”. He is aware of this so often requests help – just having someone break a word down into bite-size syllables is a huge help to him and allows him to store a new word correctly. At school he has word webs for new words and is building up a personalised dictionary with his TA.

Despite all the hurdles, LB’s comprehension skills have caught up. He seems able to access the vast majority of teaching in his year 2 classroom without too much difficulty. He does cope better with multi-sensory teaching and visual supports (such as narrative grids, Mind Maps etc.), not least because they help to hold his attention. When LB is tired, his skills in this area do diminish a little and he might need a bit more repetition but overall I think his progress underlines what the right speech and language therapy input can achieve for children with DLD.

LB’s difficulties with auditory memory have impacted in several ways – most notably on his ability to blend sounds together and to learn listed information. Literacy acquisition was always going to be a challenge for LB, as his speech continued to be unintelligible well into year 1, with vowel distortions, and his sound awareness skills (identifying the first sound in words, rhyme, syllables etc) were poor. Even the pre-reading task of describing what’s happening in a picture was ridiculously difficult, because LB didn’t have the sentence structures or vocabulary he needed in his expressive language – something else we taught specifically.

We worked hard on sound awareness in a stepwise manner – identifying the first sound of short words then longer words, then the last sound of short words etc., alongside attending speech and language therapy. Again, I feel that good phonological awareness skills are something LB wouldn’t have been able to acquire organically, but he was very much capable of achieving on a 1:1 basis with a personalised approach.

We stumbled at the point of blending sounds together – a critical final step before literacy could be gained. The difficulty it turned out, after a bit of ‘diagnostic therapy’ (again, thank goodness for my career) was the blasted auditory memory which was struggling to hold three sounds, let alone stick them together. Once more, practise paid off and eventually LB could blend. Which, having already learned his letter shapes – pretty easily, it was a visual task – meant he could read. Progress has been steady since that point, with him progressing through the reading levels as you’d expect. In my opinion, a good phonics approach is essential for a child with DLD. It was a challenge to establish that strong foundation but once it was in place, it served LB well. He is not yet meeting the expectations of the curriculum but his reading is good; he understands text and he can apply his phonic skills to decipher most words. Crucially, he loves books and listening to stories. Keeping things as fun and engaging as possible is another essential tool in encouraging a child with DLD.

However, LB is not yet ready to apply his phonic skills to writing, finding this laborious. The addition of SPAG requirements such as including a noun phrase, or adverbial, pretty much renders writing the very worst aspect of school life for LB and, in my humble opinion, totally takes the fun and imagination out of it for all children.

It is hard to get LB’s teachers to understand just how many demands writing places on the language system of child with DLD. My hunch is that when his reading skills are better still and he’s had more specific phonics teaching, his ability to spell will improve. I suspect that expressing himself on paper, with appropriate grammar, will always have its challenges.

The other area auditory memory difficulties have impacted is LB’s ability to learn listed or sequential information such as the days of the weeks, months and, perhaps most crucially, how to count. Learning the numbers to ten proved extraordinarily challenging for LB so that when he started school, aged 4 and half, he couldn’t count to three in the correct order. The knock on effect of this was that Maths was pretty much impossible. How can you do sums when you haven’t the basic language for it? When “4” or “732” are just as meaningless and unquantifiable? This certainly held LB back and for the first year, perhaps two, of his education, his literacy skills appeared better than his numeracy ones, which lagged significantly behind. However, all the repetition and visual representation eventually paid off and LB learned to count to 10. And then 20. Very soon after that, probably because he could use his logic and ability to see patterns, he could get to 100. Once he had the language, Maths wasn’t so hard at all. In fact, it looks as though LB will meet the expected levels of the National Curriculum for the first time this year, which is no mean feat, given his starting point. Now that he has the language, even the reasoning SATS paper is accessible to him, despite the problems being presented in word form.

Having DLD has made every aspect of LB’s education more challenging for him. However, with the right support, LB has proved over and over again, what children with DLD can achieve and how crucial getting that support in place is. Language underlies all learning and we ignore that at the peril of children with DLD.

 

 

A Therapeutic Week

It’s funny how you can have periods of time where everything feels difficult or like you aren’t making headway, then several positive things happen at once, making you feel as though you are taking a bigger than average leap forward.

A big positive last week, came in the form of a meeting I had with Little Bear’s teacher. We needed to update his SEN targets, both because they were due but also as part of our funding application. The teacher could have just written them by himself and wafted them under my nose to sign. However, he didn’t, inviting me to meet with him and write the targets together. We pored over the recent psychology report (see The Right Eyes ), agreeing how to group the advice into targets and how to apply the advice, in real terms, in the classroom. It felt truly collaborative, as though my knowledge as a parent was respected and even, dare I say it, valued.

Part of the reason I sound a bit disbelieving about this is not only because this level of collaboration is so tricky to attain but also because this is the same teacher I wrote Dear Teacher about, earlier in the year. I put our improved relationship down to perseverance on my part, an open mind and willingness to listen on his and probably a few of the things I wrote about in Stop. Collaborate & Listen.  It’s reassuring that these things do (can?) pay off in the end.

Irrespective of what has gone into achieving it, the outcome for Little Bear is surely more favourable, now that we are all working to the same advice? As most of the advice is around emotional, behavioural and sensory supports, the final targets did have a very therapeutic feel about them. And it’s reassuring that he’s getting a lot of that sort of support all day at school as well as at home.

The meeting also led to a second therapeutic development: a sensory/calm box. It was one of the recommendations from the psychologist, although she said ‘sensory box’ and I slightly took it in my own direction. I maintain that Little Bear’s sensory presentation is complex and often when he appears to need more movement, he actually needs help to calm. So far, this is something we have struggled with and I have found difficult to get right for him. Little Bear’s TA is very good at knowing when he needs a movement break and taking him outside to bounce a basketball or have a little kick about. However, it’s the times when he needs some comfort/ soothing to calm that we all struggle with. This is where I saw the sensory box coming in and half-inched it as more of a ‘soothing box’. We have managed to establish, after longer than you might think, that Little Bear finds fluffy things soothing so I mainly went for tactile items in the box – things to squeeze, stroke etc. I did add a kaleidoscope for a bit of calm visual distraction and also some photos of us in case he needed the reassurance of seeing us during the school day. Here’s the box before Little Bear decorated it and we added the personal bits:

 

I found that The Works was a great shop to go to for little squeezy things and much cheaper than if you look for ‘sensory toys’ on Amazon. I also got the wooden box from there, which is the ideal size and personalise-able – something Little Bear really enjoyed.

Early feedback suggests the box does offer him comfort at school, which I’m really pleased about – could that be another sensory hole plugged? There have been some issues with him not wanting his access to it to end, but hopefully they will be solved with a bit more structure and a sand timer.

A fluffy beanbag, a fluffy blanket and jackets/zippers with fluffy linings inside have all brought comfort at home over recent months so maybe we have finally hit on the right modality for soothing? I hope so. It certainly feels more effective than letting him run wild and over-stimulating himself.

The third and final therapeutic development has come in the form of massage. I’m not too sure how this came about, although I know someone has mentioned it to me previously as a good approach but I can’t exactly remember who. Somehow, Little Bear has started asking for a massage at bedtime. It has felt like an exercise in trust, communication and consent, as well as an intrinsically soothing exercise. I’m careful to ensure Little Bear is in control of the massage and that I listen carefully to him and heed his requests. He has got quite specific in expressing what he wants e.g. ‘rub my leg but not the back of my knee’, ‘more firmly please – not as hard as this but harder than this,’ (while poking my arm to show me). It feels imperative that I adhere to his boundaries in this way – not just because I clearly should respect anybody in that way, but to strengthen our bond, and as a reference point for his own behaviour e.g. when he’s holding onto my hair and refusing to let go, I can say, ‘when I give you a massage and you say, that’s enough, or not my toes, I always stop. When I ask you to let go of my hair, you should listen to me, like I listen to you’. It has also given the opportunity for me to clarify the rules on ‘private places’ i.e. ‘no, I won’t massage there, it’s a private place, nobody is allowed to touch you there’.

And even more than all that, it feels like we’re doing something fundamental: repairing gaps in Little Bear’s development.

Although Little Bear has always been affectionate, this feels different – as though he is allowing himself to be vulnerable. It has made me think about the early months when he pushed us away at bedtime, not wanting goodnight cuddles or kisses. I remember trying to respond playfully – pretending I had lost him in the bed, patting the bedsheets to try to find him. I’d mainly pat the bed but occasionally get his feet and pretend I thought they were his head. He found this funny and over time, would ask me to play the game until we eventually, after a long time, got to the point of me patting his head or chest and eventually planting a sneaky kiss. The contrast between that – me earning his trust one baby step at a time – and him asking for a massage, feels vast.

I’m reminded that we’ve come a long way – we really have.